Folic Acid Deficiency : I have been on... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,351 members10,539 posts

Folic Acid Deficiency

Zamalek profile image
2 Replies

I have been on Warfarin for 8 years, range 3-4. I have had two Retinal Vein Occlusions.

The first before treatment, and the second unfortunately when on Warfarin 3-4.

Over the last two years I have experienced more fatigue and weakness, gut problems,

palpitations, loss of appetite and considerable weight loss. The gut problem was put down

to diverticulitis, and the other symptoms I assumed with APS/Sjogrens Syndrome. However I have just had a diagnosis of Folic Acid Deficiency, and all the above

conditions are likely to be the FA deficiency, not the Sjogrens etc. At present my INR

has dropped to 2.6, and no call from the Warfarin Clinic, and I have never had the option

to self administer a Heparin dose. Have most of you seen a haemotologist? I see an

Immunologist with a special interest in AutomImmune conditions. I have upped my dose myself by an extra 1/2 mg.. Would appreciate some advice I would really like to switch to

Heparin, as the INR is so unstable , with the vit. K foods, which I should now eat because

of the FA deficiency. Help?

I

Written by
Zamalek profile image
Zamalek
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Lure2 profile image
Lure2

Hi, It is usually the Rheumatologists who are specialized in Autoimmun illnesses like Sjögren (as you say you have) and Hughes Syndrome etc but also sometimes the Hematologists know a lot.

I think you should tell the Warfarin Clinic tomorrow morning that you have raised your Warfarin dose with 1/2 mg.

Also ask your Specialist to let you have a LMW Heparin-shot when your INR goes under an INR of 3.0 as a complement to your Warfarin-dose.

Best wishes from Kerstin in Stockholm

Lure2 profile image
Lure2 in reply to Lure2

I forgot also; you can eat as much you like of vit K rich vegetables as long as you stick to the same amount of them every day! Constanty is the key with Warfarin.

Kerstin

You may also like...

Another PE or pneumonia or the big C. My thyroid has gone haywire, also my folic acids are high.

also was losing so much hair (again), that I now have bald patches etc. I was told it would take 2...

Vitamin D deficiency.

think my optimal vitamin D levels should be having APS? I have read that low vitamin D can also...

Anyone IgA Deficient with APS? Sarcoidosis APS

4 years ago. Our son (late teens) has had IgA Deficiency since toddlerhood, and recently has...

INRS up and down, weekly tests since April!

there are any APS patients who have tried Warfarin and how they have felt being on it and whether...

Can low INR cause depression/mood swings/anxiety?

correct warfarin dose to get my INR within its target range (2.5-3.5), however my husband and I...