I have seen a rheumatologist and a neurologist this week - the rheumatolist was great he really understood Hughes and my symptoms and confirmed on my CT and MRI scan my strokes as had my stroke consultant. He is testing me for lupus as I am suffering quite a few symptoms that could indicate APS with lupus. After the consultation I felt so much better that so many of my symptoms could be explained.
Next day, I saw a Neurologist as when last in hospital with a stroke I had been put on anti epileptic drugs and no one know why. My GP was not confident enough to take me off them. Any way to cut a very short private consultation shorter, she informed me that she was 90% sure that I have never had a stroke and the changes were consistent of someone of my age (51). She felt that my stroke symptoms were due to migraines and questioned the use of Warafin. She made me feel that all my symptoms were not real.
Anyone else had this experience with a neurologist?