Hi, I have just joined this forum after reading it for a while. I was diagnosed with APS following a collapse from DVT and multiple bilateral PE's 8 years ago when I was 33. I continued to clot for about 5 years whilst on Warfarin despite my INR range being 3-4. I was tested ever week as it was never stabilised. Following a further PE I was prescribed Heparin instead and inject daily. I suffer on a daily basis from headaches, brain fog and fatigue and for the last 6 months have had the most horrendous pain in my ankles regardless of how much walking I do. I am currently waiting to see my haematologist with a view to discussing Lupus as I tested borderline positive 8 years ago and don't know what this means for me. I have found it useful to read what you have posted on here as I can often relate to it and often feel alone as no one else I know has this condition. My partner often doesn't understand the fatigue and thinks I am being lazy. I look forward to getting to know you all 😄
Last edited by Manofmendip
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