I am a 51 year old women who was prefectly fit and well non smoker, non drinker who suffered a stroke in Jan 15, which affected my right side mobility, as a consequence I was tested for APS which was positive. Iin the delay in getting me started on Warafin I suffered another stroke in June which has left me with severe fatigue and less mobility on my right side, I am unable to go out alone or using a chair. I have been diagnosed with seizures too.
Although my GP has been brilliant she doesn't understand APS and its symptoms and they have become confused with stroke symptoms. My haematologist just told me my diagnosis and said you be okay on Warafin and that there would be no other symptoms.
Unfortunately my Warafin doesn't seem to be able to control my INR which has gone back to 1.2 from 2.7 in 2 weeks, my nurse asked if I had actually been taking it! I am now injecting tinzaparin sodium every day as well as taking 5mg of Warafarin.
I am seeing a rheumatologist and neurologist next week but I suspect they will not know much about this disease.
I live in Warwickshire and I would be grateful if there is anyone close by as I am unable to drive, that I could contact who is suffering anything similar and how they are coping with it.