Rutiximab with APS: Hello everyone... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Rutiximab with APS

Sazew profile image
3 Replies

Hello everyone .. Is rutiximab used in APS .. Is it work in it ...pls share ur reviews

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Sazew profile image
Sazew
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GinaD profile image
GinaD

Sorry. I have no idea. But I'd be interested to know myself.

Bell990 profile image
Bell990

My rheumatologist tried this, because he uses it with lupus patients, and finds that many of them see improvement with brain fog and exhaustion. I need help with brain fog and exhaustion so I agreed to try it. I took 3 rounds of 2 infusions, 2 weeks apart. I saw no improvement. The only side effect I experienced was dry frizzy hair. My rheumatologist has tried this with several primary APS patients (like me) and some saw improvement, some did not.

Sazew profile image
Sazew in reply to Bell990

Thanks Bell

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