I'm new to this site, I'm 21 but was first diagnosed in 2007 when I was 16 with multiple DVTs and a PE. I have yet to find anyone around my age with Hughes syndrome yet. If there is anyone out there I was wondering how they have found coping with Hughes whilst attending university or just generally having a relatively normal life.
Another thing I've found; despite being on warfarin for just over five years now it as never been stable for more than a month. Has anyone else had issues battling to get it to a normal level.