Hi, I have lupus and APS. Had my INR done and its low which means I get a stutter and shattered anyone got any low inr tips?

[ricky_chotai]

[ricky_chotai]

Thanks so much for the helpful reply. I only see my lupus consultant however moving to a bigger city so will request a APS specialist

[MaryF Administrator in reply to ricky_chotai]

Let us know where you are going to be located so we can help with more detail, and other members may also have ideas for medical professionals Mary F x

[ricky_chotai in reply to MaryF]

Manchester UK

[MaryF Administrator in reply to ricky_chotai]

Hi there again, here you are, lifted off the Hughes Syndrome Foundation website, a lift of experts in your area for your and your GP to look at: hughes-syndrome.org/self-he... Mary F x

[ricky_chotai in reply to MaryF]

Thanks!

[Hidden in reply to ricky_chotai]

Ian Bruce is the main APS expert in Manchester - he's very popular

[bluebutterfly101]

I found this really helpful as my INR is so unstable fluctuating between 4.7 and 1.5 at the moment. Have just joined a new practice and she has increased my dosage slightly as is at 1.9 at the moment. My level should be between 3.5 and 4.5 but nobody has mentioned adding anything. I am under the Louise Cootes Lupus Centre but not due back until 30th Sept. I did mention to Dr about this and suggested a change to Fragmin? but as I have been on Warfarin for 40 years and have lots of complicated conditions he suggested I stay on the Warfarin but it seems to have got worse since I saw him at beg of July. Should I contact him? Thank you