Does anyone suffer from dupetren tendons in the hands and fingers???

[traceylou]

I have awful dupetrens in my hands and fingers this started a couple of years ago after I was diagnosed as it is autoimmune and generally in men I would be very interested if anyone else has this and what treatment is available on the nhs?? many thanks

[CanaryDiamond10]

Hi Traceylou: I just happened to notice it's been a day and no replies to your question. I found this: Illinois Bone & Joint Institution :ibji.com/education/patient-...

It's here in Illinois, but may be of interest to you to get the free e- newsletter, keep updated on information, read the blog of other patients and what treatment options are available so you can begin to form some reasonable questions for your doctors specific to your case. Even though its here in the States, it should bring you some educational value and if not - there is always the deep satisfaction of that DELETE button.

I hope this helps a bit.

Warm wishes,

CanaryDiamond10

[traceylou]

Thank you

[Hidden]

I have dupuytren's, peyronie's and hypodontia (2 teeth which were never there so I have a gap in my front teeth like Terry Thomas.) my feet are trying hard to get ledderhose too.Having

Rounded Shoulders is another related symptom.

Dupuytren's is also known as the Vikings disease. I have also heard that medical staff have also described having thick blood as having Icelandic blood.

Is there a scandinavian link here to Hughes Syndrome?

Apparently these symptoms run in families and may be spread across family members.

A close family member has 12 missing teeth and required titanuim implants. I seem to have a full house of symptoms.

I take Neprinol AFD 2 2xper day with a glass of water 30 minutes before meals. ( breakfast and lunch)

I also take one Serrapeptase 80000 iu each time I take Neprinol.

My dupuytren's is much relieved.

It is also worth looking at the Peyroniesforum.net because this is closely related.

[Hidden]

Please note that Neprinol thins the blood so must not be taken with other blood thinners like warfarin or heparin. I use this treatment to replace Heparin and this has worked for me for over 3.5 years.

[tim47]

I had to look dupetrens up and I think it must be what I have, the hands slowly becoming more claw like and being unable to hold the palms flat to a flat surface. I have had it developing slowly over a good few years, four or five I'd guess. I did see my GP about it a while ago but she checked the degree and said that it wasn't bad enough, under the NICE guidelines, to require surgery at present. I suppose my palm, just below the fingers, is about an inch off a flat surface when pressed and it needs to be more like I was holding a ball to qualify. (Hope that makes sense!) Annoying and inconvenient as it affects what I can grasp and grip. I also have carpal tunnel syndrome which I think they will deal with when I get around to it, woken at night with tingling in some of the fingers.

[traceylou]

Thanks Tim, mine are the same but a whole lot worse, although I understand men have this problem more than women, with all the other problems with aps and the several strokes I have had causes major problems with the use of my hands and dextererty-I do not know why they will only consider this when they are really bad like mine still no help Traceyx