I am newly diagnosed with Hughes, secondary to what is now being called atypical Lupus (previously thought to be ME/CFS), and possibly also POTS - and am wondering about this diagnosis. The post exertional malaise I experience (which, along with other symptoms, can be triggered by physical, mental or emotional activity) is well documented as typical of that experienced by others with the illness/es currently known as ME/CFS and is frequently claimed to be unique to that condition. Moreover I have to remain with daily 'safe limits' in respect of the amount and type of activity I undertake; I have no real remissions to anything near to a 'normal' life. I currently know next to nothing about the nature of fatigue/its pattern in Lupus and Hughes. Does my experience resemble that of others with both these conditions or is what I experience unusual for a patient with such a diagnosis? Grateful for any input!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.