Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,378 members • 10,571 posts

All posts for May 2013

APS and menstruation

Hi everyone, hope you're all well? I'll try to spare details as all you ladies will be only too aware of the effect of anticoagulation and periods; I started...

Hi everyone, hope you're all well? I'll try to spare details as all you ladies ...

anniesensi

•11 years ago

13 Replies

Maybe have APS...not sure

Hi, all! First I just have to say that this is the best website that I have come across so far. Reading everyone's stories and comments helps me know that I...

Hi, all! First I just have to say that this is the best website that I have com...

janelle78

•11 years ago

5 Replies

Warfarin v heparin

I had a three month trial of heparin in 2008 and from what I can recall felt good. Then I went onto warfarin but this coincided with the first of four...

I had a three month trial of heparin in 2008 and from what I can recall felt goo...

panda60

•11 years ago

2 Replies

Want to take advantage of all our features? Just log in!

It's official.....

It has taken from 2nd August 2012 (stroke) until 9th May 2013 but I have now officially been labelled with APS - having had 2 postive tests etc. Not sure if I...

It has taken from 2nd August 2012 (stroke) until 9th May 2013 but I have now off...

Elaine77c

•11 years ago

7 Replies

How do you get signed off for self testing and self dosing, I already have a Coagucheck Xs Roche machine.

Hello all I am english and live in spain, I had a pulmonary embolism 3 years ago and take Sintrom (acenocumerol) I am soooo frustrated....I really want a...

Hello all I am english and live in spain, I had a pulmonary embolism 3 years ag...

Sarita

•11 years ago

6 Replies

Still many questions as newly diagnosed. Trying to get my head around it. Could I have had this for years and not known?

Hi all, I was diagnosed after a late term pregnancy loss. I'm now pregnant again and being treated by an excellent and clued up obstetrician. However still...

Hi all, I was diagnosed after a late term pregnancy loss. I'm now pregnant again...

Hidden

•11 years ago

3 Replies

Just wanted to update. Finally connected with my neuro, and he feels I should consult with a hematologist, as does my primary care doc.

So he has given me a name, and when I looked this doc up online, he looks like the right person for this job. Will call my primary care doc today so they can...

So he has given me a name, and when I looked this doc up online, he looks like t...

cmars

•11 years ago

8 Replies

High INR crazy palpitations and tinnitus spike, anybody else get this?

My INR has crept up to 3.7 not terrible I know but higher than I have ever had it, I am used to in hanging around 3.2. The Prof told me to try very hard to...

My INR has crept up to 3.7 not terrible I know but higher than I have ever had i...

Jade

•11 years ago

9 Replies

Can anyone tell me if 75mg aspirin daily will affect the results of the initial blood test for Hughes?

PepperT

•11 years ago

8 Replies

Hi was wondering if anyone could give advice i was tested for hughes syndrome as had alot of symptons blood test come back ok so gp left it

but when i had a reg blood test for a different medical prob the lady said i looked like she did on a bad day and she had hughes i feel so tired all the time...

but when i had a reg blood test for a different medical prob the lady said i loo...

billyboy1

•11 years ago

6 Replies

yorkshire?

hi guys. i wondered if anybody lives in east yorkshire. ?? and would be intreasted in meeting up?? thanks .stacey. :-)

hi guys. i wondered if anybody lives in east yorkshire. ?? and would be intreas...

chapman

•11 years ago

21 Replies

CAN ANYONE EXPLAIN THIS FOR ME PLEASE?

I am currently having regular blood tests as my INR has gone up as high as 11 (was given Vitamin K). It's now at 5.1 but the blood results said that I was...

I am currently having regular blood tests as my INR has gone up as high as 11 (w...

InSpain

•11 years ago

2 Replies

This is a tradgedy, a young man with his whole life ahead of him and as usual just because people don't understand Hughes Syndrome.

Benefits row dad takes his own life and is found dead in his flat by his fiancee 8 May 2013 09:49 IAIN Hodge's family say the 30-year-old had been left...

Benefits row dad takes his own life and is found dead in his flat by his fiancee...

MrsBL

•11 years ago

5 Replies

Thank you!

Thank you all so much for the support! I saw my Rheumatologist yesterday, and he has put me back onto Beta blockers. By slowing my heart rate he hopes it...

Thank you all so much for the support! I saw my Rheumatologist yesterday, and h...

Hidden

•11 years ago

5 Replies

Anybody else dealing with mitral valve prolapse?

I really got sand bagged on this one. I have had an a fib all my life. Also a fast heart rate presumably because Mom was determined that I not catch TB from...

I really got sand bagged on this one. I have had an a fib all my life. Also a ...

GinaD

•11 years ago

2 Replies

A second diagnostic blood test

I am negative for the anti cardiolipins but very strongly positive for beta2glycoprotein (10 times the accepted limit). I have had late miscarriages, possible...

I am negative for the anti cardiolipins but very strongly positive for beta2glyc...

stillwaiting

•11 years ago

4 Replies

New here - have been searching for health problems 3plus years - thought MS - just tested positive for lupus anticoagulant.

Will go back to my doc in three months for recheck. Meantime, told to take lo dose aspirin. Calls in to neuro to see if my brain lesions, sx are related to...

Will go back to my doc in three months for recheck. Meantime, told to take lo d...

cmars

•11 years ago

17 Replies

Evidence for Clopidogrel as well as Wafarin

You may remember that about a month or so ago I asked a question about the use of these two drugs together as the GP had stopped my Clopidogrel and I was...

You may remember that about a month or so ago I asked a question about the use o...

Elaine77c

•11 years ago

3 Replies

LAS-is it hughes syndrome?

Hi, ive seen this question being asked on here before but with no definitive answers. I suffered two minor strokes feb 2012 due to 3 fairly large blood clots...

Hi, ive seen this question being asked on here before but with no definitive ans...

elt-las

•11 years ago

5 Replies

Foot problems

Sorry, another question. I am having a lot of pain in my feet. Xrays show a lot of white patches. Rheumatologist says he will start treatment when warfarin...

Sorry, another question. I am having a lot of pain in my feet. Xrays show a lot ...

stillwaiting

•11 years ago

4 Replies

low

I am ashamed to ask this but hey ho here we go.......It has taken 20 years to be diagnosed (last month). I thought a diagnosis would be a relief and of course...

I am ashamed to ask this but hey ho here we go.......It has taken 20 years to be...

stillwaiting

•11 years ago

14 Replies

Desperate, Can You Help Me?

I was diagnosed 10 years ago after a blood clot in my carotid artery. While recovering I spent my time on the computer since I couldn’t do much else. I...

I was diagnosed 10 years ago after a blood clot in my carotid artery. While rec...

Bell990

•11 years ago

42 Replies

Feeling low

Hi my INR keeps going up and down I don't know why any suggestions. My range is 3 - 3.5. Week before last was 4.1 this week was 2.9 ?????

Hi my INR keeps going up and down I don't know why any suggestions. My range is ...

noodlesrita123

•11 years ago

10 Replies

Migraines

I have the most horrendous migraine headaches virtually every day, its just the intensity that varies, and "one" can last for up to 5 days with no reprieve at...

I have the most horrendous migraine headaches virtually every day, its just the ...

Hidden

•11 years ago

16 Replies

My Memory Issue - trying to perform in a stressful environment - frustration, fatigue and fear of the future - any sharers? Any answers?

I am having real trouble in retaining information and losing my train of thought half way through making a point. I have quite a stressful job which I only...

I am having real trouble in retaining information and losing my train of thought...

Trai

•11 years ago

4 Replies

Anyone else get this......?

I have had a tingling sensation down the left side of my face for the last couple of days ? Sometime ago I had it running over my shoulder it's a strange...

I have had a tingling sensation down the left side of my face for the last coupl...

Jillymo

•11 years ago

32 Replies

Is anyone on Xarelto for APS? Doc switched me from Warfarin to that plus baby aspirin. I have had 1 DVT. INR was not stable.

KathrynKathyKate

•11 years ago

7 Replies

Who has had a sudden metatarsal fracture in the foot?

Hi there, Has anybody had one of these? Mary F x

MaryF

Administrator•11 years ago

11 Replies

Does anyone have migraines with their APS? I'd like to know how you deal with them. Thanks, Monica

monilady

•11 years ago

23 Replies

Plans for the weekend

Hi Just thought I'd drop a positive blog about life with APS and a Kidney Transplant (almost 9 years ago now!) So this weekend I am: Staying at a...

Hi Just thought I'd drop a positive blog about life with APS and a Kidney Tra...

Hidden

•11 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2013

APS and menstruation

Maybe have APS...not sure

Warfarin v heparin

It's official.....

How do you get signed off for self testing and self dosing, I already have a Coagucheck Xs Roche machine.

Still many questions as newly diagnosed. Trying to get my head around it. Could I have had this for years and not known?

Just wanted to update. Finally connected with my neuro, and he feels I should consult with a hematologist, as does my primary care doc.

High INR crazy palpitations and tinnitus spike, anybody else get this?

Can anyone tell me if 75mg aspirin daily will affect the results of the initial blood test for Hughes?

Hi was wondering if anyone could give advice i was tested for hughes syndrome as had alot of symptons blood test come back ok so gp left it

yorkshire?

CAN ANYONE EXPLAIN THIS FOR ME PLEASE?

This is a tradgedy, a young man with his whole life ahead of him and as usual just because people don't understand Hughes Syndrome.

Thank you!

Anybody else dealing with mitral valve prolapse?

A second diagnostic blood test

New here - have been searching for health problems 3plus years - thought MS - just tested positive for lupus anticoagulant.

Evidence for Clopidogrel as well as Wafarin

LAS-is it hughes syndrome?

Foot problems

low

Desperate, Can You Help Me?

Feeling low

Migraines

My Memory Issue - trying to perform in a stressful environment - frustration, fatigue and fear of the future - any sharers? Any answers?

Anyone else get this......?

Is anyone on Xarelto for APS? Doc switched me from Warfarin to that plus baby aspirin. I have had 1 DVT. INR was not stable.

Who has had a sudden metatarsal fracture in the foot?

Does anyone have migraines with their APS? I'd like to know how you deal with them. Thanks, Monica

Plans for the weekend

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