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Hughes Syndrome APS Forum

10,378 members • 10,571 posts

All posts for May 2013

confused? Is hughes syndrome just another name for lupus anticoagulant, many thanks in advance.

liz0161

•11 years ago

1 Reply

Cognitive and memory issues

My brain doesn't work properly and I know that so have developed some strategies, but not enough I think. The thing I find hardest is dealing with information...

My brain doesn't work properly and I know that so have developed some strategies...

panda60

•11 years ago

11 Replies

Headaches

Does anyone else suffer from bad headaches? I'm finding I am getting them at least twice a day. Maybe it my meds?

Does anyone else suffer from bad headaches? I'm finding I am getting them at lea...

Wenz15

•11 years ago

4 Replies

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New Zealand??

Hi Anyone live or have lived in NZ? I have an opportunity to go and work in Christchurch and was wondering if anyone has any advice about emigrating or NZ...

Hi Anyone live or have lived in NZ? I have an opportunity to go and work in ...

Hidden

•11 years ago

5 Replies

Completely frustrated

I was reading through the last few months of Prof. Hughes blogs and so much of my life and that of my mother's life with Hughes Syndrome has become so clear....

I was reading through the last few months of Prof. Hughes blogs and so much of m...

APSdsntHaveMe

•11 years ago

13 Replies

Found this interesting article...

Below is an article that addresses Possible Environmental Triggers Associated with Autoimmune Diseases:...

Below is an article that addresses Possible Environmental Triggers Associated wi...

BK2006

•11 years ago

2 Replies

Is it possible for Anti-phospholipid Antibodies to attack other molecules (hormones or minerals) in the blood cell?

BK2006

•11 years ago

5 Replies

Sudden Onset: Vision / Concentration Issues

I'm so frustrated I could scream! It's been months now and I have no answers! It started in January, but like always, I ignored it for way too long. I have...

I'm so frustrated I could scream! It's been months now and I have no answers! ...

LipsNClips

•11 years ago

15 Replies

Are these steroid withdrawal symptoms?

Hi, have permission to come off steroids - hooray. Possibly didn't even need them in the first place - grrrrr. I have been reducing a bit fast, I know, but...

Hi, have permission to come off steroids - hooray. Possibly didn't even need th...

Coppernob

•11 years ago

12 Replies

Been losing the will to fight at the moment....

....and now slowly losing the sight in my right eye.And also back on the antibiotics for yet another chest infection.my INR has also be erratic rangeing from...

....and now slowly losing the sight in my right eye.And also back on the antibio...

popshaw21

•11 years ago

18 Replies

INR level getting high

I feel that I must be a bit thick but learning about and managing warfarin seems so complicated. My INR nurse admits APS is new to her. I am just so so glad I...

I feel that I must be a bit thick but learning about and managing warfarin seems...

stillwaiting

•11 years ago

9 Replies

A&E

went to hospital last tuesday as had been lying on sofa for three days, exhausted and dizzy,the nurse who assesed me had never heard of APS.she struggled to...

went to hospital last tuesday as had been lying on sofa for three days, exhauste...

donnabrain

•11 years ago

5 Replies

A MAJOR LOSS

I have lost my best friend in the world today- my roomate of 25 years has passed- she saw me thru all my problems with this disease which we call life-- at my...

I have lost my best friend in the world today- my roomate of 25 years has passed...

jetjetjet

•11 years ago

14 Replies

Do you have an odd sleep/wake cycle?

I know we are all more than tired and often have a level of fatigue that is hard for others to understand but my brain and body wants to sleep more during...

I know we are all more than tired and often have a level of fatigue that is hard...

Dagen

•11 years ago

13 Replies

What do I do, I need clexane because my blood is not thinning?

Prof. Khasmashta put me on Clexane & it was finally getting better. I saw the dr. Here in the United States & he wanted to keep me on the injectable for a bit...

Prof. Khasmashta put me on Clexane & it was finally getting better. I saw the dr...

designer16

•11 years ago

1 Reply

hughs syndrome

i got told 2 years ago that i have hughs syndrome im in constant pain and tierd all the time though im on traetment im still getting blood clots any ideas as...

i got told 2 years ago that i have hughs syndrome im in constant pain and tierd ...

loulou123

•11 years ago

16 Replies

Tough decisions, facing reality!

Tuesday I go to the neurologist to start Coumadin/warfarin. Thursday my son, my baby is graduating HS, and there is a 6 hour drive I would make to get there....

Tuesday I go to the neurologist to start Coumadin/warfarin. Thursday my son, my...

tchance11

•11 years ago

3 Replies

Curiosity may have killed the cat, but it could save some of us!

My wife and I are new to the Hughes Syndrome community. This is actually our first blog! I couldn’t help myself, so here goes. A little background history...

My wife and I are new to the Hughes Syndrome community. This is actually our fi...

BK2006

•11 years ago

11 Replies

Now is the time to write a book

Dear All I am so concerned at the plight of the seronegative APS/Hughes Patient, being one of those myself, and quite possibly my children, that I feel...

Dear All I am so concerned at the plight of the seronegative APS/Hughes Patie...

MaryF

Administrator•11 years ago

20 Replies

am a male, does anticardiolipin syndrome has any effect on giving a baby ?

Cronos

•11 years ago

2 Replies

Hidden thyroid problems with autoimmune disease

Why it is important to check your thyroid if you have an autoimmune disease....

MaryF

Administrator•11 years ago

4 Replies

does tramadol has any contraindication with INR ?

Cronos

•11 years ago

3 Replies

Dignosed with fibro as well today....

Hi i was told today i am now borderline hughes but have fibro... I have bee injected with plaquinal and have other tablets hydro.... Something. Will update if...

Hi i was told today i am now borderline hughes but have fibro... I have bee inje...

smellyfootsies

•11 years ago

7 Replies

Clexane injection locations

Hi guys I was wondering if anyone could give some advised on where to inject. I've asked the question before but can't remember. I'm running out of space on my...

Hi guys I was wondering if anyone could give some advised on where to inject. I'...

MJLS

•11 years ago

4 Replies

I feel so lathargic & unwell I can hardly stand

My referal to Dr McHugh in Bath has finally been forwarded......I am feeling very unwell & desperate for help. I hope i dont have to wait long for an...

My referal to Dr McHugh in Bath has finally been forwarded......I am feeling ver...

Jillymo

•11 years ago

18 Replies

camera

Finally had camera into stomach (cannot rember the medical word). Had to stop warfarin Four days before and have tinzaparin injections. Wasnt as bad as i...

Finally had camera into stomach (cannot rember the medical word). Had to stop wa...

sharonap

•11 years ago

3 Replies

Internets fault

Im not egnoring anyone but my phone internet is been stupid!!!. Just wanted u to kw.x:-)

Im not egnoring anyone but my phone internet is been stupid!!!. Just wanted u to...

chapman

•11 years ago

2 Replies

terrible stomach ache, advice please

please can anyone offer advice, after eating i always feel swollen bloated and uncomfortable but the last 2 weeks eating has become agony swollen stomach,...

please can anyone offer advice, after eating i always feel swollen bloated and u...

mully

•11 years ago

5 Replies

Just an update .... from little old NZ

I have been back to the specialist, blood results have also confirmed Lupus Anticoagulation. Finally started on Warfarin on Tuesday. 3mg with weekly blood...

I have been back to the specialist, blood results have also confirmed Lupus Anti...

Wenz15

•11 years ago

3 Replies

My oh my, good news, neurologist gave OK to start Coumadin....

I have concerns, because it is not to treat Hughes, bit because of, lupus anticoagulant and high homocystene in blood labs, plus history of stroke and TIAs....

I have concerns, because it is not to treat Hughes, bit because of, lupus antico...

tchance11

•11 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2013

confused? Is hughes syndrome just another name for lupus anticoagulant, many thanks in advance.

Cognitive and memory issues

Headaches

New Zealand??

Completely frustrated

Found this interesting article...

Is it possible for Anti-phospholipid Antibodies to attack other molecules (hormones or minerals) in the blood cell?

Sudden Onset: Vision / Concentration Issues

Are these steroid withdrawal symptoms?

Been losing the will to fight at the moment....

INR level getting high

A&E

A MAJOR LOSS

Do you have an odd sleep/wake cycle?

What do I do, I need clexane because my blood is not thinning?

hughs syndrome

Tough decisions, facing reality!

Curiosity may have killed the cat, but it could save some of us!

Now is the time to write a book

am a male, does anticardiolipin syndrome has any effect on giving a baby ?

Hidden thyroid problems with autoimmune disease

does tramadol has any contraindication with INR ?

Dignosed with fibro as well today....

Clexane injection locations

I feel so lathargic & unwell I can hardly stand

camera

Internets fault

terrible stomach ache, advice please

Just an update .... from little old NZ

My oh my, good news, neurologist gave OK to start Coumadin....

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