A second diagnostic blood test - Hughes Syndrome A...

Hughes Syndrome APS Forum

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A second diagnostic blood test

stillwaiting profile image
4 Replies

I am negative for the anti cardiolipins but very strongly positive for beta2glycoprotein (10 times the accepted limit). I have had late miscarriages, possible TIA's, lost a lot of my speech, colour vision, and memory. Also a problem with my bones.

My consultant who I reckon is brilliant never requested a second test just put me straight on warafrin - HUGE improvements in sight and speech within the first week.

I'm worried when I go St Thomas' they'll question not having the second test. But I know they treat people who are sero-negative. Do you think not having a second blood test is an issue?

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stillwaiting
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Manofmendip profile image
Manofmendip

I don't know but they should go with your consultant, I think, and look at the improvement since you have been on Warfarin.

Best wishes.

Dave

Salty profile image
Salty

When I saw Prof Hughes, he happened to mention that he did not agree with the guideline to retest people 12 weeks later to be sure the tests weren't a false positive. In your case, the test obviously wasnt a false positive since you have classic manifestations and the treatment has helped you greatly. Since the antibodies can come and go, repeating the test in your case just runs the risk of you testing negative and an MD who doesn't know as much about APS later questioning your diagnosis.

stillwaiting profile image
stillwaiting

Salty - thank you so much - I have been a bit worried about this and now you have put my mind at rest :)

Sorry to be thick but what does MD mean?

stillwaiting profile image
stillwaiting

Thanks :) (yet again!!) x.

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