Foot problems: Sorry, another question... - Hughes Syndrome A...

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Foot problems

stillwaiting profile image
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Sorry, another question. I am having a lot of pain in my feet. Xrays show a lot of white patches. Rheumatologist says he will start treatment when warfarin target level is reached as that must be a priority. He reckons by my next appointmnet (2 months) he can start treatment. Has anyone else had this?

Lynn.

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stillwaiting
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stillwaiting profile image
stillwaiting

Hi again :)

I think it is plaquenil that he's going to try once the warfarin is working better. He said he didn't want to add a new medicine in case my low INR went even lower.

Thanks for replying :)

Nanuuk profile image
Nanuuk

Thats really good to know. After 20y on chloroquin phos/ hydroxychloroquin I had to stop treatment (i have lupus) due to toxic build up in my retinas - since then the pain in my feet has driven me crazy! Is it nerve pain, muscle, joints????

And why is it ALWAYS worse at night?!

emmaj profile image
emmaj

I find all my pains are worse when i relax - either sat down or when im in bed at night, my neurophysiotherapist said its due to the nerves not being supplied so they dont supply the muscles,and they sort f go in to overdrive and dont really know when to switch off. im going to try plaquenil on my next visit to london x

stillwaiting profile image
stillwaiting

Thanks for replying both :)

The pain is worse at night - I feel better knowing what it is and that it is going to be treated. I know it won't be cured but at least I am no longer being ignored:)

L.x.

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