I am ultra positive for all 3 antibodies associated with APS. Have suffered PE's and several DVTs. Have also just taken early retirement at 53 from a very high powered job in the City due to severe memory problems and word search issues.
I live in the North West but am also under St. Thomas'. I was advised by St.T's in December, that following an MRI scan, I had suffered a number of mini strokes and this was causing my various issues.
I was referred to a Neurologist near home who was a massive APS sceptic and questions St T's opinion. He essentially felt that a significant majority of APS patients were paranoid with regards to their symptoms and was all but dismissing a number of the significant issues we are all facing, eg, chronic fatigue, feeling ill most of the time etc etc etc. This was not a great start and basically confirms what a number of you have been saying all along, in that we are seriously lacking good empathetic health care professionals who actually understand APS. Consequently, and maybe this has already been suggested, shouldn't we, as a group, be putting together a geographically based list of doctors who fit the criteria?
By the way, I have an excellent and caring Haematologist in Manchester for starters!
Let me know your thoughts