Thank you: Hi everyone , i would just... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Thank you

kimmi9 profile image
7 Replies

Hi everyone , i would just like to say thank you to everyone that has helped me on this website , i felt so alone before but now i feel that i have somewhere to go and talk when things are rough or just to ask questions , i havn`t been here for long but i already feel apart of something without having to go out of the house or plucking up the courage to make a phone call , it`s really important to me to be able to just sit at my laptop and blog and someone will talk to me so thank you again to you all for making life that little easier , im so glad that i found this website it is a lifeline. Kim x x

Written by
kimmi9 profile image
kimmi9
To view profiles and participate in discussions please or .
7 Replies
MaryF profile image
MaryFAdministrator

Hi there, what lovely feedback, we are all in a similar boat to a varying degree or two, and nice to hear from you, please have a lovely week-end. Mary F x

kimmi9 profile image
kimmi9

Thank you Maryf you have a good weekend to Kim x x

Manofmendip profile image
Manofmendip

Thank you Kimmi

We were all alone in APS, once, until we found our wonderful friends on here.

Best wishes.

Dave xx

kimmi9 profile image
kimmi9

Thank you Dave , i totally agree with you , im so pleased that there are people out there that care , it is wonderfull. Kim x x

noodlesrita123 profile image
noodlesrita123

I find it really hard as I'm only 26 people say to me why aren't you out enjoying ur self if only they understood I have no energy xxx

kimmi9 profile image
kimmi9

Noodlesrita , that must be tough for you , im 46 and i feel like im 80 , i see people alot older than me getting around better and i find it hard , being 26 must be even harder all i can say is try to keep as active as possible i no thats easier said than done as i am pulled to my bed several times a week but i try to stay possitve as i can PMA possitive mental attitude it does help. Take Care Kim x x

lynzy profile image
lynzy

Hi

I know exactly how you feel. I look forward to the updates every morning, they really cheer me up, and I know there's always someone to talk to, or cheer me up if I'm feeling grotty any day. It's a well organised site, and respects peoples privacy too, which means a lot to me. It also saves me moaning to my husband all the time abut how I feel

Take care and have a great weekend.

You may also like...

A big thank you to Paddy

will remain and active member on here. I just wanted to thank you for all your previous hard work,...

Thank you & Merry Christmas to all

the main responders on here I just wanted to say 'Thank you' for just being there. I have only...

THANK YOU ALL !!!!!

constant pain, thanks to all of you wonderful people, I am just so sad it came so late. Thank...

THANK YOU ALL !!!!!!!!!!!!!!!!

THANK YOU, THANK YOU,THANK YOU ALLLLLLLLLLLLL!!!!!!!!!!!!!! I came across this site by accident as...

A Big thank you to Wittij from this site

I had my aorta valve replaced and thanks to Wiitij's suggestion, I gave my surgeons in writing, the...