Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for November 2012

Total loss of speech

Has anyone lost their speech completely when having stroke like symptoms? This has happened twice now and on each occasion I have not been able to say...

Has anyone lost their speech completely when having stroke like symptoms? Th...

janekins

•11 years ago

24 Replies

INR TESTING

All, would appreciate your feedback on the following please. I invested in the Roche CoaguChek XS machine and use it regulalry to monitor my INR. Last week I...

All, would appreciate your feedback on the following please. I invested in the ...

1818hst

•11 years ago

10 Replies

Catastrophic APS or just a bad 3 weeks.

HI, I am new here and I DON'T have APS or Lupus. It is my husband who as Primary APS. He was dx 3 years ago when he pulled a calf muscle and ended...

HI, I am new here and I DON'T have APS or Lupus. It is my husband wh...

Tiggercat

•11 years ago

11 Replies

Want to take advantage of all our features? Just log in!

My hands are swollen, cracked and painfull.

I know the weather changed and every year my hands get dry, but this year they are bad. Any suggestions?

I know the weather changed and every year my hands get dry, but this year they a...

Barbie

•11 years ago

9 Replies

My first appointment went well

Had my first appointment yesterday at St Thomas. Went really well. Had 11 more tubes of blood taken and a good all round MOT. Back again on the 7th of December...

Had my first appointment yesterday at St Thomas. Went really well. Had 11 more t...

MJLS

•11 years ago

3 Replies

Pins and Needles in my face... should I Be Worried???

I have had increased migraines and headaches, a few really disturbing dizziness moments and the latest short period of pins ad needles down the left side of my...

I have had increased migraines and headaches, a few really disturbing dizziness ...

jennybee

•11 years ago

18 Replies

Has anybody seen Prof. D'Cruz at St Thomas's?

I don't see his name about much on this site. I was given his name by the staff form the Hughes Foundation as a reccommended person to see for initial consult....

I don't see his name about much on this site. I was given his name by the staff ...

mitzygaynor

•11 years ago

10 Replies

Dangerously low potassium

I'm going to add a really long email here from an e-pal of mine in the States. She has APS and Sjogrens. Can anyone shed any light on what is going on with...

I'm going to add a really long email here from an e-pal of mine in the States. ...

Coppernob

•11 years ago

4 Replies

Lower Backache / Groins

Hi All, for the past 5 days I have had lower back ache which radiates in to my groins, also my belly feels abot sore & bloated. I thought I had pulled a muscle...

Hi All, for the past 5 days I have had lower back ache which radiates in to my g...

smellyfootsies

•11 years ago

5 Replies

MS probable, I wonder if i have hughes?

hello, i'm in the `probable MS' limbo land with atypical features. Slow ascending progression from toes now to thighs over two years, no remittance. Quite...

hello, i'm in the `probable MS' limbo land with atypical features. Slow ascend...

willo5

•11 years ago

8 Replies

I feel the need for a quick rant!

In August the appointment with my Rheumy was cancelled because I hadn’t had all the tests he wanted doing completed – fair enough. In September I had another...

In August the appointment with my Rheumy was cancelled because I hadn’t had all ...

InSpain

•11 years ago

5 Replies

NAUSEA

i HAVE HAD PROBLEMS WITH NAUSEA FOR QUITE A WHILE, I AM ON 30 DRUGS A DAY AND FINDING THIS A PAIN TO TAKE, THEY SEEM TO INCREASE WHEN BEEN TO HOSPITAL. ANYWAY...

i HAVE HAD PROBLEMS WITH NAUSEA FOR QUITE A WHILE, I AM ON 30 DRUGS A DAY AND FI...

daisy11

•11 years ago

8 Replies

Check list

I have my appointment in 2 days- I have written a 2 week diary of how I feel, what meds I'm on and my medical history. Do I need anything else?

I have my appointment in 2 days- I have written a 2 week diary of how I feel, wh...

MJLS

•11 years ago

2 Replies

question from my dutch aps site

I recived two e mails from the same person 1)I have a question had 27 September surgery on my left hand with a finger continuously removes from the bowl it...

I recived two e mails from the same person 1)I have a question had 27 September...

sander

•11 years ago

2 Replies

AMPUTATION VERSUS BENEFITS OF ANTI-COAGULATION MEDS?

Per my earlier post about facing amputation, thank you so very much for responding/advice. I will seek a second opinion! I have never been put on aggressive...

Per my earlier post about facing amputation, thank you so very much for respondi...

pinkcollar

•11 years ago

6 Replies

Survey on Sport and Hobbies

English Federation Disability Sport are currently running some research to better understand the hobbies and interests of disabled people, in particular their...

English Federation Disability Sport are currently running some research to bette...

paddyandlin

•11 years ago

5 Replies

How long for joint pain to settle down?

I know this is probably a really individual thing but 3 weeks ago I had a big flare up. Joints were red and hot but that went after a few days but the deep...

I know this is probably a really individual thing but 3 weeks ago I had a big fl...

travelnut

•11 years ago

3 Replies

Asprin

Hello Can I assume that the cheap 75mg asprin that you buy from the supermarket is exactly the same stuff that you get if you were to get it on prescription...

Hello Can I assume that the cheap 75mg asprin that you buy from the supermarke...

apsgirl

•11 years ago

8 Replies

THANK YOU ALL !!!!!

I just wanted to thank all of you amazing, brave people who have given me a new lease on life. My INR is being raised and my Warfarin dose has been doubled to...

I just wanted to thank all of you amazing, brave people who have given me a new ...

Hidden

•11 years ago

14 Replies

Has anyone faced amputation?

I saw my cardio-thoracic surgeon today - he operated on my left leg years ago and diagnosed my APS. The leg has clogged up again and is very painful. He said...

I saw my cardio-thoracic surgeon today - he operated on my left leg years ago an...

pinkcollar

•11 years ago

13 Replies

Haematologist vist

Received copy of letter sent to GP by Haematologist (he was really nice and knew all about aps, only young so hopefully its part of their training) its states...

Received copy of letter sent to GP by Haematologist (he was really nice and knew...

sharonap

•11 years ago

10 Replies

More D-Dimer

I had to see the out of hours doctor yesterday after headache numbness and sight problems it was confirmed I had had a TIA. Ive to go for a scan and see the...

I had to see the out of hours doctor yesterday after headache numbness and sigh...

margaretjo

•11 years ago

3 Replies

I need to find a specialist in my area

I was diagnosed with APS after my second miscarriage. I have since had a child followed by secondary unexplained infertility and another miscarriage.I have...

I was diagnosed with APS after my second miscarriage. I have since had a child f...

NBtired

•11 years ago

3 Replies

Has anyone had problems with marevan?

Recently, I had to take Marevan for a couple of weeks because Coumadin was unavailable in Petropolis and Rio de Janeiro's drugstores. I thought maybe if I took...

Recently, I had to take Marevan for a couple of weeks because Coumadin was unava...

BrazilianBade

•11 years ago

9 Replies

Ideas please people

Hi there, my daughter, 15, is on max dose of 'Plaquenil' and has been building this up since last January, she has been doing well, she also takes 75 mg baby...

Hi there, my daughter, 15, is on max dose of 'Plaquenil' and has been building t...

MaryF

Administrator•11 years ago

11 Replies

Any ladies had a TVT mesh sling fitted for stress incontinence?

Just wondering whether any ladies out there have had a mesh sling fitted as a bladder repair. I had my Johnson & Johnson's Gynecare Mesh fitted in 2003 and it...

Just wondering whether any ladies out there have had a mesh sling fitted as a bl...

viv112

•11 years ago

14 Replies

I was wondering if anyone with APS suffering from unbareable pain?

I would like to know if drs acknowledge this understand that there is pain associated with the disease? I am always in pain and can not do daily activities...

I would like to know if drs acknowledge this understand that there is pain assoc...

APSdsntHaveMe

•11 years ago

10 Replies

HEADACHES

Have had a really sore headache for the last couple of days but woke up this morning and its better but have a numb feeling down my left hand side of face as...

Have had a really sore headache for the last couple of days but woke up this mor...

Hidden

•11 years ago

14 Replies

Falls

I was just sat here thinking, not a thing I do that often, and was wondering if anyone else has a lot of falls. I have had a lot recently and feel quite...

I was just sat here thinking, not a thing I do that often, and was wondering if ...

judes

•11 years ago

8 Replies

CALCIUM DEPOSITS

My shoulder and top of my left arm has given me some problem now for over a year. I thought I had pulled a muscle so left it to get better itself. The last few...

My shoulder and top of my left arm has given me some problem now for over a year...

Hidden

•11 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2012

Total loss of speech

INR TESTING

Catastrophic APS or just a bad 3 weeks.

My hands are swollen, cracked and painfull.

My first appointment went well

Pins and Needles in my face... should I Be Worried???

Has anybody seen Prof. D'Cruz at St Thomas's?

Dangerously low potassium

Lower Backache / Groins

MS probable, I wonder if i have hughes?

I feel the need for a quick rant!

NAUSEA

Check list

question from my dutch aps site

AMPUTATION VERSUS BENEFITS OF ANTI-COAGULATION MEDS?

Survey on Sport and Hobbies

How long for joint pain to settle down?

Asprin

THANK YOU ALL !!!!!

Has anyone faced amputation?

Haematologist vist

More D-Dimer

I need to find a specialist in my area

Has anyone had problems with marevan?

Ideas please people

Any ladies had a TVT mesh sling fitted for stress incontinence?

I was wondering if anyone with APS suffering from unbareable pain?

HEADACHES

Falls

CALCIUM DEPOSITS

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