Received copy of letter sent to GP by Haematologist (he was really nice and knew all about aps, only young so hopefully its part of their training) its states 'as you know she is a complicated patient' been called alot worse.
Given heparin injections for when INR below 3.0.
Nice to have a positive contact with a doctor/consultant.
Glad you had a good appointment 
Yes I do feel at times that I'm being used as a guinea pig or a training aid!!!!
But at least it was a possitive one for you
Sue x
Well done to get a positive experience x
Well done, and good news, Mary F x
Hi Sharon
That is good news.
Who and where is this Haemotologist?
Best wishes.
Dave
Good point... seeing as the UK data base is being built! Mary F x
know just what you are saying- one of my favorite dc.s once told me i wasn't normal ????i said to her that was a fine thing to tell your patient ? now i am referred to as " unique " thats a bit better i told her!- i also find the younger DC's are alot more attentive. i let them bring in students and resident dc.'s as much as possible-as it gives them an opportunity that they just can't get else where. plus it gives me a chance to tell our stories- the more the better in my book ! when i was 1 st trying to get my INR pushed up , i took in stories of other people from here to aid my case --- it worked-- alot of times it helps by showing our dc.'s that this is a huge problem. i just recieved a notice -congress is planning on cutting millions out of research funding -- i just sent them my out look on that. if they want to make cots they should start at the top - where most of the useless spending is going on . o well enough raving from me i guess :-)--------------------------------- jet
Hi Sharon,
Glad you had a positive appointment! Is nice to hear good things about the docs! Helps to know they are out their!!!
Complicated not a bad description!! Mine was, "weird autoimmune thingy"!!! i'le settle for weird thanks!!!
Take care gentle hugs love Sheena xxxxxx
ok jess -- do i detect a short pun-- standing on a soap box to be seen OR is it that i need a bath ???????????????????????????????????????????????????????????????????????????????????????????-------WOW ---- just funning HON - how have you been ?? i'll pnone you later !
The Consultant Haematologist was Dr Stephen McKew
Countess of Chester Hospital
Chester
sharon xx
Has anyone experienced pain along with pins and needles sensation?
New Jersey & NYC ALS and Lupus People
Does anyone take melatonin?
Self testing while on vacation out of the country
