Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,360 members • 10,549 posts

All posts for November 2012

Back to work

I had a very good job until being diagnosed with APS in 2008. I could not work as I was experiencing TIA's and still am although on Clexane 120mg for life. I...

I had a very good job until being diagnosed with APS in 2008. I could not work a...

Hidden

•12 years ago

3 Replies

Menopause and APS

I am a APS sufferer diagnosed in 2008. I am now 49 and been confirmed that I am going through the Menopause. Please can anyone out there tell me if their...

I am a APS sufferer diagnosed in 2008. I am now 49 and been confirmed that I am ...

Hidden

•12 years ago

5 Replies

Sero-negative

I was wondering if anyone would be able to share their stories of how they were diagnosed with sero-negative APS? I just wanted to know if anyone has had...

I was wondering if anyone would be able to share their stories of how they were ...

MJLS

•12 years ago

4 Replies

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awful summer, autumn not looking good

Hi all, not been on for a while. Got back to work fully and without problems eventually, had last interview with HR and Matron this week. Had work car...

Hi all, not been on for a while. Got back to work fully and without problems eve...

bevers1

•12 years ago

3 Replies

so fed up of my failing body, left eye went friday saw optic guy who called neuro so steriods for me at the weekend, back to hospital on mon

A.P.S. is bad enough just not happy that the M.S. had to join in, seening neuro and hemo on the 15th time to shout and get them sorted, still hoping to go...

A.P.S. is bad enough just not happy that the M.S. had to join in, seening neuro ...

miley

•12 years ago

6 Replies

Going to see the Prof on Tuesday strangely nervous

I am going back to London on Tuesday. I know how lucky I am, but I have kept my head down for 5 years not seeing anybody. I have not been retested for APS...

I am going back to London on Tuesday. I know how lucky I am, but I have kept my ...

Jade

•12 years ago

16 Replies

Ive lived with aps for 12 years now,Ive had a stroke in 2001,following the stroke my epilespy has got worse,the seizures are terrifying....

I see some disturbing visions and there are messages attached telling me to do harm to myself.is there anyone else out there who has exsperienced these types...

I see some disturbing visions and there are messages attached telling me to do h...

popshaw21

•12 years ago

10 Replies

I previously asked a question at the tail end of a post which I believe was not noticed by most people(except for APs not Fab-thanks for the

comments!)so I will create a new question.I would be interested in people's experiences of fatigue.I was diagnosed with APS in January and was able to continue...

comments!)so I will create a new question.I would be interested in people's expe...

StevePT

•12 years ago

16 Replies

Anyone experienced hearing their heartbeat & muffled sound?

Hello fellow Hughies, it's been a while but I have been lurking :) on Sunday my hearing became muffled & I could hear my heartbeat. 4 days later it is driving...

Hello fellow Hughies, it's been a while but I have been lurking :) on Sunday my ...

SassyOne

•12 years ago

6 Replies

Anyone have a medical alert bracelet? If so, will you please tell me what you have written on it. Thank you!

KellyO

•12 years ago

18 Replies

Help! Headaches ruining my life

Hi, I was diagnosed with Hughes in 1998 after suffering a stroke. I have suffered with the most horrendous migraines since 1993. I am now getting desperate...

Hi, I was diagnosed with Hughes in 1998 after suffering a stroke. I have suffer...

Hidden

•12 years ago

27 Replies

D-Dimer

I think Ive mentioned this before so forgive me im trying foir clarification. Ive just had another D-Dimer blood test yesterday and once again it was very...

I think Ive mentioned this before so forgive me im trying foir clarification. Iv...

margaretjo

•12 years ago

10 Replies

Vancouver Island, Canada - Hughes Specialist?

Hi folks: does anyone know of a Hughes specialist in BC/Vancouver Island?

pinkcollar

•12 years ago

3 Replies

Blood clots while entering test tube

I've been here for my husband's APS (he also has polycythemia), but now I have a question for myself. On Oct 27th, I fainted & ended up in the ER. Blood tests...

I've been here for my husband's APS (he also has polycythemia), but now I have a...

sbncmo

•12 years ago

13 Replies

sorry - just one for the ladies!!!!!

Hi all, does anybody else have problem periods? Ive always had exceptionally long periods (8 days every 28 days) and awful ovulation pain (started at 18 along...

Hi all, does anybody else have problem periods? Ive always had exceptionally lon...

emmaj

•12 years ago

10 Replies

Charcot Marie Tooth plus Hurricane Sandy

Hi thanks to APSnotFab for suggesting Charcot Marie Tooth. I went to my neuro who is now leanining towards this diagnosis. tell me something APS notFab, if you...

Hi thanks to APSnotFab for suggesting Charcot Marie Tooth. I went to my neuro wh...

lovemyheart

•12 years ago

1 Reply

Dear Hughes CommunityI am a new member and would like some advice.

I have APS recently diagnosed and this explains 30 years of strange symptoms ( all clearly link up to having Hughes of course!) and my absolute certainty...

I have APS recently diagnosed and this explains 30 years of strange symptoms ( ...

Kuluvalley

•12 years ago

15 Replies

Explain t.m. D.

Savers pains in my legs feet with cramps causes me to get up and walk around in the night this helps but dose not cure the problem. Thanks Chipy.

Savers pains in my legs feet with cramps causes me to get up and walk around i...

Chipy

•12 years ago

5 Replies

INR 0.9 without Anticoag therapy

HI fellow Hughes Syndrome Ppl, I was diagnosed with APS after venous clots developed in my calf during the final weeks of my pregnancy. No history prior to...

HI fellow Hughes Syndrome Ppl, I was diagnosed with APS after venous clots devel...

Allele

•12 years ago

4 Replies

Can anyone tell me if APS is hereditary? Dr. says it came from parent. Wondering if my kids can get it.

ah0923

•12 years ago

13 Replies

Does anyone else have TMD??

Hya all - another routine visit has ended in another diagnosis, TMD, does anyone else have this?? My right side of my jaw locked when I was 18,and recently my...

Hya all - another routine visit has ended in another diagnosis, TMD, does anyone...

emmaj

•12 years ago

8 Replies

Update from Oz

Hi, All. Sorry that it's been a while since my last post here but things have been getting really hectic here. Since my last post, my daughter has been into...

Hi, All. Sorry that it's been a while since my last post here but things have b...

WayneL

•12 years ago

10 Replies

hi all

any reasons y i keep gettin bad headaches n bein sick 4 over a week nw...... my inr is low n keeps dippin ...... goes frm 1.3 then bk dwn 2 1.0 my dose is...

any reasons y i keep gettin bad headaches n bein sick 4 over a week nw...... my ...

rach1081985

•12 years ago

10 Replies

Which doctor to see at St Thomas's Hospital? Perhaps, kindly PM me if you'd be able to?

Hi This would be my first post on this site so please do go easy on me :D xxx I was wondering if any of you had been diagnosed privately or on NHS. I'm...

Hi This would be my first post on this site so please do go easy on me :D xxx...

Hidden

•12 years ago

26 Replies

dont no where to start

hi im new to this so not sure whats going to happen. ive had 14 miscarriages in total and got told yeasterday i might have hughes, can anyone help me out im so...

hi im new to this so not sure whats going to happen. ive had 14 miscarriages in ...

Hidden

•12 years ago

9 Replies

Has anyone contacted the doctors who deal with Hughes Syndrome directly (without a referral) in the Toronto & area? Please, please help!

I'm finding it extremely difficult to get a doctor who specializes in Hughes Syndrome in the Toronto area. My family doctor will not give me a referral - I'm...

I'm finding it extremely difficult to get a doctor who specializes in Hughes Syn...

john1969

•12 years ago

6 Replies

Dutch Aps day

Together with the dutch lupus organisation NVLE there will be a meeting on November 24 Location: congres centre Hoog Brabant, Radboudkwartier 23 (in the...

Together with the dutch lupus organisation NVLE there will be a meeting on Nove...

sander

•12 years ago

9 Replies

Received Letter About Benifit Changes Due Forms, Medical & Interview @ Job Centre.HELP. How can I find a good GP in my area ? Shoebury SS3

I had a great GP who learnt all about my problems. Acted promptly to referal reauest from Clnsultants & acted immediately to prescription chsnges etc. Also his...

I had a great GP who learnt all about my problems. Acted promptly to referal rea...

fiona734

•12 years ago

4 Replies

Hi all - just had a period of double vision (still going ) on and off but quite blurry -

I can manage to compensate and strangely better when driving - Optiician said common with fibro any one else had anything like this ?

I can manage to compensate and strangely better when driving - Optiician said co...

sangje

•12 years ago

9 Replies

anything else gonn hit me

cant believe my luck so stressed my dad my rock i cant believe how sudden this was cant believe hes gon e

cant believe my luck so stressed my dad my rock i cant believe how sudden this w...

kezebabe

•12 years ago

19 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2012

Back to work

Menopause and APS

Sero-negative

awful summer, autumn not looking good

so fed up of my failing body, left eye went friday saw optic guy who called neuro so steriods for me at the weekend, back to hospital on mon

Going to see the Prof on Tuesday strangely nervous

Ive lived with aps for 12 years now,Ive had a stroke in 2001,following the stroke my epilespy has got worse,the seizures are terrifying....

I previously asked a question at the tail end of a post which I believe was not noticed by most people(except for APs not Fab-thanks for the

Anyone experienced hearing their heartbeat & muffled sound?

Anyone have a medical alert bracelet? If so, will you please tell me what you have written on it. Thank you!

Help! Headaches ruining my life

D-Dimer

Vancouver Island, Canada - Hughes Specialist?

Blood clots while entering test tube

sorry - just one for the ladies!!!!!

Charcot Marie Tooth plus Hurricane Sandy

Dear Hughes CommunityI am a new member and would like some advice.

Explain t.m. D.

INR 0.9 without Anticoag therapy

Can anyone tell me if APS is hereditary? Dr. says it came from parent. Wondering if my kids can get it.

Does anyone else have TMD??

Update from Oz

hi all

Which doctor to see at St Thomas's Hospital? Perhaps, kindly PM me if you'd be able to?

dont no where to start

Has anyone contacted the doctors who deal with Hughes Syndrome directly (without a referral) in the Toronto & area? Please, please help!

Dutch Aps day

Received Letter About Benifit Changes Due Forms, Medical & Interview @ Job Centre.HELP. How can I find a good GP in my area ? Shoebury SS3

Hi all - just had a period of double vision (still going ) on and off but quite blurry -

anything else gonn hit me

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