Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for September 2012

ESA is this positive not too sure?

Hi all thought I would just let you know that I was due to go for a medical assessment 30th August 2012. I set my alarm to get up especially early to give...

Hi all thought I would just let you know that I was due to go for a medical asse...

AlisonT2

•12 years ago

1 Reply

I have /had these symptoms Migranes,Tia's pregnancy problems,dvt,etc what should I do next ? I'm 39 and fit but I'm confused and feel unwell

Gibz

•12 years ago

3 Replies

Hi I'd love some help I've recently had a TIA and think I've got Hughes Syndrome I'm only 39 please can I have some advice ? Thanks x

Gibz

•12 years ago

11 Replies

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Do all the aps symptoms disappear with proper anticoagulation mess?

If not, which symptoms persist? Also, anyone here on arixtra instead of warfarin? My hematologist says arixtra is more powerful.

If not, which symptoms persist? Also, anyone here on arixtra instead of warfari...

Calico

•12 years ago

13 Replies

Thank you

hi there again!!! Im unsure if I'm going about responding to the question I asked previously in the correct way however I'd just like to say thank you to the...

hi there again!!! Im unsure if I'm going about responding to the question I aske...

Kay722

•12 years ago

4 Replies

Could I have Hughes syndrome??

Im not sure if I have "sticky blood" but have heard 2 medical professionals use it after I've had miscarriages and asked if I'd ever been prescribed aspirin. I...

Im not sure if I have "sticky blood" but have heard 2 medical professionals use ...

Kay722

•12 years ago

5 Replies

I'm slow to respond to questions and have trouble articulating words. Anyone have similar problems?

jean48

•12 years ago

21 Replies

Hi have aps been on warfrin for 4 months inr goes from 1.1 one week and stays there and goes to over 10 the follwing week on 17mg warfrin

Hidden

•12 years ago

12 Replies

Please help me find a doctor in the Toronto area-my symptoms are worsening and my family doctor can't help me. Thank you for helping.

john1969

•12 years ago

12 Replies

Can anyone please help me find a doctor who sees/treats patients with Hugh's syndrome in the Toronto area? Thank you.

Hidden

•12 years ago

2 Replies

HYDRO-THERAPY - A REALLY POSITIVE EXPERIENCE

Hi everyone! Well I've just returned from my first hydro-therapy session. I cannot recommend it enough. I have SLE and APS as a secondary along with...

Hi everyone! Well I've just returned from my first hydro-therapy session. I ca...

InSpain

•12 years ago

6 Replies

HELP!! DLA Tribunal on Friday

After a long wait I am going to DLA tribunal this Friday 21/9/12. I am still waiting for reports fro my neurologist, I have previous St thomas' letters from...

After a long wait I am going to DLA tribunal this Friday 21/9/12. I am still w...

Gorgeous

•12 years ago

23 Replies

Charcot joint??

Hi everyone...I havent been on this site in a while, but i think of all of you and appreciate all the help and support that you all give even when not feeling...

Hi everyone...I havent been on this site in a while, but i think of all of you a...

lovemyheart

•12 years ago

3 Replies

PHENINDIONE - OR RATHER LACK OF!!!

Does anybody have any idea when Phenindione is due back in stock. I was orginally told July and now my pharmacist has no idea nor do the anti-coag team. I...

Does anybody have any idea when Phenindione is due back in stock. I was orginall...

tiredmum

•12 years ago

1 Reply

Can anyone tell me, how I find out where and when the next Hughes forum is. Where do I get all this info from?Many thanksSam

Bagpuss01

•12 years ago

7 Replies

eye bleed

I went to the optican for my regular check and found out I have a bleed in my righeye. I am going to see the specialist but not for several weeks. I do get...

I went to the optican for my regular check and found out I have a bleed in my r...

margaretjo

•12 years ago

4 Replies

eyes

A while back someone put a link on here to a website where you can test your field of vision. Anybody remember the website or have I just imagined it...Tried...

A while back someone put a link on here to a website where you can test your fie...

sharonap

•12 years ago

2 Replies

Blood Test's

Hi I am having to have more blood tests on Thursday and I was wondering if any one can tell me what these are? The test is a CPR or CRP and a ESA or ESR?...

Hi I am having to have more blood tests on Thursday and I was wondering if an...

Stannington-lad

•12 years ago

6 Replies

Hughes videos!

Wow that seemed to take forever!!! As promised here are the links to the videos I uploaded to you tube over the last few days!! :) :) I hope...

Wow that seemed to take forever!!! As promised here are the links to ...

Suzypawz

•12 years ago

20 Replies

self testing - a severe blow

I have been self testing for the last four years and my PCT have prescribed the strips. Got back from holiday to a letter from my surgery to say that Surrey...

I have been self testing for the last four years and my PCT have prescribed the ...

panda60

•12 years ago

9 Replies

Liver Function really high

Hello all, Has anybody had problems with their LFT? The reading for this test should be between 22 and 40 and I have just spent a week in hospital because...

Hello all, Has anybody had problems with their LFT? The reading for this tes...

MrsBL

•12 years ago

13 Replies

3 part videos to go on here soon! plus face book site to join :)

I WILL GET THEM UPLOADED!!!! Yep I'm still up on comp' trying to get these videos done of the Hughes Syndrome meeting earlier in the year!! :O...

I WILL GET THEM UPLOADED!!!! Yep I'm still up on comp' trying to get ...

Suzypawz

•12 years ago

4 Replies

Self management - An interesting story!

I was diagnosed with APS in 2007 following 3 DVTs and a bilateral pulmonary embolism. I dutifully joined the queue every week at the anticoagulation clinic...

I was diagnosed with APS in 2007 following 3 DVTs and a bilateral pulmonary embo...

Hidden

•12 years ago

11 Replies

Lack of knowledge and awareness of APS amongst the medical profession. Region-Northwest of England

Hello everyone, I was diagnosed with APS in 2007 following 3 DVTs and a bilateral Pulmonary Emobolism. My long term medication consists of Warfarin and 40mg...

Hello everyone, I was diagnosed with APS in 2007 following 3 DVTs and a bilater...

Hidden

•12 years ago

5 Replies

URGENT - Any ideas or help gratefully received!

I am being forced into a psychiatric assessment here in Spain for symptoms associated with APS. If I don’t go it is a possibility that all treatment that I...

I am being forced into a psychiatric assessment here in Spain for symptoms assoc...

InSpain

•12 years ago

4 Replies

Any APS patients out there suffer with severe period pains..I'm wondering if there could be a link to my years of suffering ?

Rhian21

•12 years ago

16 Replies

California??

Is there anyone on here that lives in or near California? I feel like a lot of you live in the UK and it is so frustrating not knowing anyone with my disease...

Is there anyone on here that lives in or near California? I feel like a lot of y...

nicolebarks

•12 years ago

20 Replies

No symptom relief

Hi! I've had numb ears, back of head, tingling in fingers, toes, leg and arm weakness, foggy thinking with little relief. Diagnosed in Feb 2012 with primary...

Hi! I've had numb ears, back of head, tingling in fingers, toes, leg and arm we...

Calico

•12 years ago

6 Replies

Off Warfarin...

I have had my first visit with the Haemotologist and has taken me off Warfarin and am now in aspirin...my symptoms of heavy legs, woozy brain and basically...

I have had my first visit with the Haemotologist and has taken me off Warfarin a...

kmac42

•12 years ago

15 Replies

First Doctor's Visit

I was diagnosed with APS 2-3 years ago after a miscarriage. The doctor told me to take a baby asprin daily and that was it. Several months ago I started...

I was diagnosed with APS 2-3 years ago after a miscarriage. The doctor told me t...

Sadieagogo

•12 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2012

ESA is this positive not too sure?

I have /had these symptoms Migranes,Tia's pregnancy problems,dvt,etc what should I do next ? I'm 39 and fit but I'm confused and feel unwell

Hi I'd love some help I've recently had a TIA and think I've got Hughes Syndrome I'm only 39 please can I have some advice ? Thanks x

Do all the aps symptoms disappear with proper anticoagulation mess?

Thank you

Could I have Hughes syndrome??

I'm slow to respond to questions and have trouble articulating words. Anyone have similar problems?

Hi have aps been on warfrin for 4 months inr goes from 1.1 one week and stays there and goes to over 10 the follwing week on 17mg warfrin

Please help me find a doctor in the Toronto area-my symptoms are worsening and my family doctor can't help me. Thank you for helping.

Can anyone please help me find a doctor who sees/treats patients with Hugh's syndrome in the Toronto area? Thank you.

HYDRO-THERAPY - A REALLY POSITIVE EXPERIENCE

HELP!! DLA Tribunal on Friday

Charcot joint??

PHENINDIONE - OR RATHER LACK OF!!!

Can anyone tell me, how I find out where and when the next Hughes forum is. Where do I get all this info from?Many thanksSam

eye bleed

eyes

Blood Test's

Hughes videos!

self testing - a severe blow

Liver Function really high

3 part videos to go on here soon! plus face book site to join :)

Self management - An interesting story!

Lack of knowledge and awareness of APS amongst the medical profession. Region-Northwest of England

URGENT - Any ideas or help gratefully received!

Any APS patients out there suffer with severe period pains..I'm wondering if there could be a link to my years of suffering ?

California??

No symptom relief

Off Warfarin...

First Doctor's Visit

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