Can anyone tell me, how I find out where and when the next Hughes forum is. Where do I get all this info from?Many thanksSam

[Bagpuss01]

[MaryF Administrator]

Hi there, do you mean the annual Hughes Syndrome Foundation Patient's day? It usually happens in May, at St Thomas' and there will be plenty of publicity well in advance, and there is a film of he last one, do let me know, if you wish to see it, and I will paste it on here for you. Mary Fx

[Bagpuss01 in reply to MaryF]

Hi Mary, thanks for this advice. I will keep an eye out in the new year for this date. I am presuming that I will need to register. I would love to view the last one. Thanks. And thanks again for your help. Sam

[MaryF Administrator in reply to Bagpuss01]

Hi there - here you go, and also KateH below, at the charity also has transcripts of the day available. You will find this film covers it: youtube.com/watch?v=CFi9KpK...(Not working as expected?)

Mary F

[Hidden]

Yes, if you mean the HSF Patients' Day it's being held on Wednesday 15th May 2013. You will be able to book in the new year. The transcript from this year's is still available from our main website.

[Bagpuss01 in reply to Hidden]

Thanks :-]

[kathyD64]

A date for the diary kx

[Hidden]

I would love to get to this and will try to book the time off work.