Sticky Blood-Hughes Syndrome Support
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3 part videos to go on here soon! plus face book site to join :)

3 part videos to go on here soon! plus face book site to join :)


Yep I'm still up on comp' trying to get these videos done of the Hughes Syndrome meeting earlier in the year!! :O

Iv'e had problems uploading them for around 4 days now!!

I've had to split it up into 3 now & chop bits out of it!!

I'll give Kate a full copy of what I saved onto a disc so she may be able to upload it a better way than I've tried.

Hopefully they will be done by Sunday!! & then I will put them on a post on here for you :)

Also including my face book page I had set up:

where you can feel free to leave posts on too on how you get through your day to show others what its like to have Hughes.....I thought it might be a good idea to use it for that as well as the images, slideshows & videos I put on there.......a way to show others a day to day life of having Hughes?.....what do you think?

Right I'm off to bed soon, so I'll speak to you all again later xx

4 Replies

Hi Suzy what about uploading them to Youtube and then you just post the link? That is what we do with large vids at work. Dx


Yep thats what I've done hun, I couldnt have each part any longer than 15 mins so had to cut them down!!! but I've done it & I'm sending Kate the full version for her to use wherever she needs it too.

Thanks, Sue xx


All great news, so pleased Mary F x


Thank you for your usual support hun xx


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