California??

[nicolebarks]

Is there anyone on here that lives in or near California? I feel like a lot of you live in the UK and it is so frustrating not knowing anyone with my disease or even any doctors here who really know what they are treating me for.

[MaryF Administrator]

Hello there, yes this is UK based, but we have many from the USA on here, sooner or later they will introduce themselves, and somebody may turn out to live near you. Best wishes. Mary F x

[77tiger05]

I live in NC now but will soon be moving back to San Diego! Are you anywhere near there?

Look forward to hearing from you. You will like this site, it is great to have so many thoughts with everyone!!! It's a great bunch of people!!!

[nicolebarks in reply to 77tiger05]

Hi I am in Ventura, about 40 mins northwest of la.

[Salty]

Hi, I live in Colorado. I have an excellent hematologist. She is listed on the apsfa.org website along with several MD's in California. On the website homepage in the red bar on the left, you will see "find a doctor". My understanding is all of the MD's on the list have been submitted by patients with APS who found that doctor helpful in helping them manage their condition. Good luck!

[MaryF Administrator]

Hello this it the organization in the USA which I have heard of, which is very reliable - a good source of info. americanaps.org/ I have not heard of the one listed above. However this one, I have passed on to everybody in USA who needs more information:

Best wishes. Mary F x

[Renae]

I am in las vegas...formally from palm springs ca..

[mhokeness]

Hi, I am in Los Gatos, CA. I know how you feel. I was hoping my doctor would let me post a notice in his office regarding an APS get together. It would be nice to meet with someone who has this disease. But, no luck so far. Where are you?

Margaret

[nicolebarks in reply to mhokeness]

Hi I am in Ventura, about 40 mins northwest of la. Your dr has other APS patients. Unfortunately I am my hematologists first patient with this disease

[Hidden in reply to nicolebarks]

see the info I left in the comment box......re: UCLA med

[Hidden in reply to mhokeness]

I left this info in the comment box

Division of Rheumatology/ Department of Medicine, Geffen School of Medicine, University of California-Los Angeles, 1000 Veteran Ave. Room 32-59 UCLA, Los Angeles, CA 90095, USA. [e-mail]

[marse623]

I'm in California, near Sacramento. Where are you from?

[iwantsimple]

Hi! I'm in Fresno, CA.

[wedgeman in reply to iwantsimple]

Dearest iwantsimple, We are practically neighbors Im from Exeter,Calif. just South east of Fresno about 50 miles. My name is Dave and I was Diagnosed with APS in 2000. Drop me an email anytime at [e-mail]. Take care and God bless sincerly Wedgeman out

[iwantsimple in reply to wedgeman]

Hi! Just saw this. I wish there were a way to get notified when someone replies to something we post. Anyway, You are close. Have you found a decent doctor? I have a flexible PC doctor, but I had to go to UCSF for a diagnosis.

[Hidden]

Division of Rheumatology/ Department of Medicine, Geffen School of Medicine, University of California-Los Angeles, 1000 Veteran Ave. Room 32-59 UCLA, Los Angeles, CA 90095, USA. [e-mail]

Hi I found this in a medical journal.....Dr. JM Grossmas works at UCLA....good wishes

[mhokeness]

Hi Nicole. I know there are "many" other APS patients in the practice. that's all the info I could get. After reading posts from people all over the world for the last 10 years, one thing I do know is that he is the best APS doctor I've heard of. He knows all the latest theories, treatments and decides whether they will work for me or not. He has been cutting down his hours.... makes me afraid he will retire early!

[apslibrarian]

Hi Nicole. I live in Bakersfield so not too far from you. I am newly diagnosed; my head is still spinning from all of the information available. After being told by my pulmonologist to "look it up on the Internet," I found a doctor here who has done some research and written a paper on APS (I will have to track down the link). I decided before I saw him that if he didn't work out, I was going to UCLA or Cedars-Sinai. After suffering with DVT and multiple blood clots in both lungs this summer, I promised myself and my family that I would do my best to stay healthy -- that includes finding a good doctor. I have only had a preliminary appointment and see him again next week to formulate a game plan, but I have already learned more from him after an hour than I did in four visits with the other doctor.

I wish you luck in your search.

[3boys]

Hello! I am from WI . Good docs are hard to find everywhere. Luckily mine is very up on my APS, and RA. I hope you find answers soon!

[pinkpink]

HI,

I just joined this website a few days ago. I live in California in the East Bay area..near Concord, Walnut Creek, Livermore. It would be nice to know some other people with APS in the area.

[PMARIE]

Hi, I am from Boise, Idaho and am looking for a physician with good knowledge of APLS. I have been treating with a neurologist for 11 years but she seems to have limited information. I am now 55 but did have all of the pregnancy related symptoms, eclampsia miscarriages, and a stillborn daughter. I had an ischemic optic nerve stroke 10 years ago, and am now having seizures. I have a difficult time keeping my INR's regulated and feel that I need to see a doctor that is up to date on this disease process. I am willing to travel to find a good physician. Any suggestions?

Thank you.