Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,402 members•10,612 posts

All posts for September 2012

Anyone have gastrointestinal pain? My 17yr old son has undiagnosed GI pain & I have APS. Wondering if he could too? Any thoughts?

Zaney3622

•12 years ago

8 Replies

DepoProvera compatible with APS?

I just began DepoProvera injections to prevent ovulation due to serious bleeding after a normal ovulation. Is anyone else out there using this form of birth...

I just began DepoProvera injections to prevent ovulation due to serious bleeding...

olleberj

•12 years ago

6 Replies

Anyone experienced excess bleeding due to ovulation?

I was hospitalized last week and they removed over two liters of blood from my abdomen. They said they thought I didn't stop bleeding after ovulating. My INR...

I was hospitalized last week and they removed over two liters of blood from my a...

olleberj

•12 years ago

2 Replies

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I am desperately hoping you can give me some general guidance on Hughes Syndrome in pregnancy.

In brief I have had two miscarriages and have now tested positive for Lupus Anticoagulant. I am now pregnant again and being treated with 75mg of Aspirin and...

In brief I have had two miscarriages and have now tested positive for Lupus Anti...

Boodle

•12 years ago

8 Replies

ESA

Just had phone call from ATOS my medical (11am today) has been cancelled the doctor is sick!!!!! They will phone me with new date. I had no sleep last night...

Just had phone call from ATOS my medical (11am today) has been cancelled the doc...

sharonap

•12 years ago

5 Replies

alguien con los siguientes síntomas????

I was diagnosed at 16 years old with psoriasis. At 26 I was admitted by a hemolytic anemia, results of analyzes give a virus (Epstein Barr) and after 5...

I was diagnosed at 16 years old with psoriasis. At 26 I was admitted by a hemo...

ANALIA

•12 years ago

12 Replies

Update on health

The pain in my head hurts with no let up now, can not bare standing or sitting for to long, laying down is getting painful too. I have missed appointments,...

The pain in my head hurts with no let up now, can not bare standing or sitting f...

KarenOR

•12 years ago

10 Replies

Diagnosed

Just got home after 6 days in hospital from my second DVT. They have finally diagnosed me with sero negative Hughes. At the moment I am on warfrin and clexane...

Just got home after 6 days in hospital from my second DVT. They have finally dia...

MJLS

•12 years ago

6 Replies

Update on pregnancy

Hello all just giving you all an update on pregnancy I'm currently 29 weeks and having problems as I have a reduced blood flow to placenta. Been up hosp cos...

Hello all just giving you all an update on pregnancy I'm currently 29 weeks and ...

hartnell5

•12 years ago

3 Replies

Q. for those with visual disturbances

For those of you who experience visual disturbances such as blurry vision, seeing stars, spots, lights etc. do you find they are directly related to your INR?...

For those of you who experience visual disturbances such as blurry vision, seein...

SassyOne

•12 years ago

5 Replies

Yay, I'm a proud granny!!! Lovely surprise tonight as well!! :-)

Hi all Firstly sorry not been around much lately, been feeling pretty rough, plus so much going on, i'm struggling through though! I am so chuffed, my...

Hi all Firstly sorry not been around much lately, been feeling pretty rough, pl...

jessielou

•12 years ago

20 Replies

Doing my bit....

Hi all. I don't often get time to write, but read the site regularly and it has been the source of good information and comfort. I have Hughes syndrome,...

Hi all. I don't often get time to write, but read the site regularly and it has...

JMA_10

•12 years ago

2 Replies

Dizziness, Numbness in left hand&fingers

Hi, I have been feeling dizzy all day it is worse when i move my head as in look up or down, I feel like I am being pulled backwards, when walking i seem to be...

Hi, I have been feeling dizzy all day it is worse when i move my head as in look...

Tanbelan

•12 years ago

20 Replies

MP using me and my illness as a case study in debate regarding the way ATOS are treating people who are claiming sickness benefits

Throughout my ordeal with the DWP and ATOS I have found my MP to be most helpful. Yesterday his secretary contacted me to ask permission to use me as a case...

Throughout my ordeal with the DWP and ATOS I have found my MP to be most helpfu...

Rhian21

•12 years ago

10 Replies

Decrease in the wellness :(

Hey everyone, my hips are literally shouting in pain. Sadly, what happened only on the right side, it is happening on the left side as well. It is rather...

Hey everyone, my hips are literally shouting in pain. Sadly, what happened only...

BrazilianBade

•12 years ago

6 Replies

In need of advice to keep my stress levels down

I will be coming off my Fragmin injections in a couple of weeks and im worried about whats going to happen and if there will be any problems in the rest of my...

I will be coming off my Fragmin injections in a couple of weeks and im worried a...

katrinahug03

•12 years ago

3 Replies

Can anyone recommend Professor Munther Khamashta from the London Bridge Clinic?

Hi! Can anyone recommend Professor Munther Khamashta from the London Bridge Clinic? I need an urgent assessment of my APS to help 'educate' my doctor's here...

Hi! Can anyone recommend Professor Munther Khamashta from the London Bridge Cli...

InSpain

•12 years ago

29 Replies

letter

Just got letter of doctor to take to my medical on thursday, after reading it I feel sorry for myself.... not really just puts things into(cannot think of the...

Just got letter of doctor to take to my medical on thursday, after reading it I ...

sharonap

•12 years ago

8 Replies

Symptoms even when INR is right??? Or can INR change drastically in one day?

My INR was exactly right (3.6, which has been relieving most of my symptoms) when I was tested Tuesday. Then, within a day or two, I started having symptoms...

My INR was exactly right (3.6, which has been relieving most of my symptoms) whe...

iwantsimple

•12 years ago

27 Replies

Any link with cancer??

In a couple of hours I leave for the hospital and surgery. Last year I had kidney cancer, had my kidney removed. Now they are removing just the cancer tumor...

In a couple of hours I leave for the hospital and surgery. Last year I had kidn...

Leigha

•12 years ago

14 Replies

Three petitions, which could do with a lift:

The first two are world wide ones: the last one a UK one only: It takes a minute to sign all three and please pass them on. I care passionately about...

The first two are world wide ones: the last one a UK one only: It takes a mi...

MaryF

Administrator•12 years ago

10 Replies

Can I claim for misdiagnosis of my condition?

I was misdiagnosed by a hospital in 2010 and told I was having a migraine, when infact I had three bloodclots on the brain which threatened to end my life. I...

I was misdiagnosed by a hospital in 2010 and told I was having a migraine, when ...

Sal0712

•12 years ago

8 Replies

I have tested + for anticardiolipin antibodies - is this related to Hughes Syndrome?

I am apparently positive for these antibodies. I had to attend the recurrent miscarriage clinic about 7 years ago before finally managing to have my second...

I am apparently positive for these antibodies. I had to attend the recurrent mi...

LucyLocket

•12 years ago

7 Replies

How many of you are suffering at lack of knowledge by neurologists and being told nothing we can do for you.

I was diagnosed in 2000 and have had to educate medical profession at every appointment. I have attacks every now and then and at present cannot walk...

I was diagnosed in 2000 and have had to educate medical profession at every appo...

sgtraf

•12 years ago

5 Replies

Do I need to have my son tested for Hughes?

jean48

•12 years ago

10 Replies

help needed aps/neurology

Hi all i am so frustrated with the system at the moment i really hope you can help. I am under two neurologists who have basically admitted i am out of their...

Hi all i am so frustrated with the system at the moment i really hope you can he...

emmaj

•12 years ago

13 Replies

Another breathing/sleeping question

I know I asked a similar question before, but I'm still having problems, and I'm wondering if others ever experience this. At least two nights a week, I...

I know I asked a similar question before, but I'm still having problems, and I'm...

iwantsimple

•12 years ago

13 Replies

Haematologist still says my migraines have nothing to do with APS/Hughes

Hi there this is my first post :), I have recently been diagnosed with Hughes, I had hepatic artery thrombosis in May 2009, I had had a liver transplant in...

Hi there this is my first post :), I have recently been diagnosed with Hughes, I...

Tanbelan

•12 years ago

13 Replies

hip replacement experiences?

So I saw the orthopedist PA at Duke yesterday. She said what all orthopedists have said -- that its probably time for the hip replacement (but I'm only 57!)...

So I saw the orthopedist PA at Duke yesterday. She said what all orthopedists h...

GinaD

•12 years ago

12 Replies

E mail

Hi everyone this is mainly aimed at admin. I have suddenly stopped getting emails from you with the posts on. It seems to have happened since i joined the...

Hi everyone this is mainly aimed at admin. I have suddenly stopped getting emai...

margaretjo

•12 years ago

1 Reply

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2012

Anyone have gastrointestinal pain? My 17yr old son has undiagnosed GI pain & I have APS. Wondering if he could too? Any thoughts?

DepoProvera compatible with APS?

Anyone experienced excess bleeding due to ovulation?

I am desperately hoping you can give me some general guidance on Hughes Syndrome in pregnancy.

ESA

alguien con los siguientes síntomas????

Update on health

Diagnosed

Update on pregnancy

Q. for those with visual disturbances

Yay, I'm a proud granny!!! Lovely surprise tonight as well!! :-)

Doing my bit....

Dizziness, Numbness in left hand&fingers

MP using me and my illness as a case study in debate regarding the way ATOS are treating people who are claiming sickness benefits

Decrease in the wellness :(

In need of advice to keep my stress levels down

Can anyone recommend Professor Munther Khamashta from the London Bridge Clinic?

letter

Symptoms even when INR is right??? Or can INR change drastically in one day?

Any link with cancer??

Three petitions, which could do with a lift:

Can I claim for misdiagnosis of my condition?

I have tested + for anticardiolipin antibodies - is this related to Hughes Syndrome?

How many of you are suffering at lack of knowledge by neurologists and being told nothing we can do for you.

Do I need to have my son tested for Hughes?

help needed aps/neurology

Another breathing/sleeping question

Haematologist still says my migraines have nothing to do with APS/Hughes

hip replacement experiences?

E mail

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