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Hughes Syndrome APS Forum

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has any one with APS suffer with any eye problems.

sweett profile image
9 Replies

im an APS sufferer and today im being refered to the eye hosp due to something sticky blood has corsed to my eye,, not quite sure what yet till go get to the hosp,

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sweett profile image
sweett
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9 Replies
BrazilianBade profile image
BrazilianBade

Hey... I am so sorry to hear about that. I did had scleritis ( an inflammation on the white part of the eye that creates a thick blood bubble and hurts like hell. My doctor has told me that was due to the APS and I had to drop steroid colirium for almost two months until the bubble has disappeared. I also have very dry eyes and I have use lubricant drops like Fresh tears. Sweety, you must keep the faith that things will be fine. I'LL pray for you. Bia

Tomcat profile image
Tomcat

I've been getting some really painfull twinges in my eyes lately, they last a minute or two and are really unpleasant. Also going to have to have an eye op in the coming months to remove a tyridium, this'll be my third op but only my second with APS, first one failed and I'm hoping it wasn't as a result of the APS.

Stannington-lad profile image
Stannington-lad

Hi

I get blurred vision in my left eye from time to time and eye's twinges like a muscle spasm.

lesleylaw profile image
lesleylaw

l have permanant blurred vision, my eyes twitch a lot and sometimes my eye sockets are quite painful, not sure if its the aps or sjogrens that causes this.

sweett profile image
sweett

omg thanks guys i feel so much better that im not alone,,, not that im wishing for anyone to have anything wrong, its just a comfort to know their is people out there that understand what your going threw,,,, thanks again x

zonker profile image
zonker

The problems with my eyes is how I found out I had APS. My neuro-eye specialists discovered "sticky blood" was causing the optic nerve damage in both eyes and other vision and retinal migraine problems. I take warfarin therapy for life! Although my INR jumps around. Still get eyes checked frequently for mini-strokes in eyes.

annie330 profile image
annie330

I have some issues with blurry vision but it comes and goes. I was confused by the hospital was sent straight there by opticians and seen over two months by different people who said there was nothing wrong but they referred me to someone who specialises in vasculitis and eyes. He told me that I had had a haemorrhage and it was clearly visible (he had a student with him who could see it). I went a few months later and asked if the warfarin had caused the haemorrhage (me thinking it was bleed and I'm anxious that my INR target is high 4.0). He looked at me a bit oddly and said let me explain "you've had a stroke in your eye.

sweett profile image
sweett

omgosh a stroke in the eye,, that is something iv never heard of,,, see i havnt realised that APS corses a whole load of problems,, x

Christopher_O profile image
Christopher_O

APS caused me some more vision loss, glasses since I was 10. Caused a blind spot in mt left eye. Technically speaking I am now legally blind in said eye.

I now realize what I was seeing in my eyesight before being diagnosed with APS was in fact the blood flow. Kinda looked like fish eggs.

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