Hi all, I have been a member of this site for several months now, but have found it difficult to tell my story as it seems kind of pathetic compared to some which I have read. For over twenty years my body has mimicked several ailments but when tests are run to confirm them they come back negative. My last major "diagnosis" was approximately two and a half years ago of Right sided heart failure the testing once again determined that the diagnosis was
incorrect but the clinic at which I was being seen referred me to the Lipids clinic where I met a really great Doc who ordered several blood tests and took note of everything I said along with my family history (I have had two siblings die from DVT) and I found myself being seen at the Haematosasis and Thrombosis clinic at St. Tommys under the care of Professor Hunt, after two positive blood tests I was told I had Sticky Blood/ APS, however every letter sent to my GP says that I am under investigation for APS, I have spent so many years with health problems that have never met with a definite diagnosis that I dont/didnt really ask questions I just accepted what I was told and dont complain if some new symptom pops up, however by visiting this site when I went to see the haematologist in May I asked a few questions the main one being do I or dont I have APS and apparently I consistently test apL positive but because I dont have a history of DVT, PE or TIA they will not confirm I have APS. At present I am only on Aspirin and Plaquenil still feeling unwell most of the time and as of the last two weeks all of the time. My symptoms are as follow: Headaches, Tiredness/Fatigue, Joint pain, Dizziness, Chest pain, Swollen legs, feet, hands and head (some days my glasses leave really deep ruts in the side of my head they are practically wedged there),Light headedness which causes me to lose my balance and Gastro-Intestinal problems. After reading one of Prof Hughes blogs I decided to try and pinpoint when all of this started happening, I thought I had been a relatively heathy youngster but when I went back to my childhood apart from normal childhood illnesses (chicken pox, measles etc) I was diagnosed with Anaemia at six months and was on medication for that for at least seven years and I was plagued by conjunctivitis and boils aside from headaches and visual disturbances. Sorry its been such a long boring blog I did warn you Paddy that I tend to waffle lol. And thank you to everyone for giving me the sense and courage to start asking questions as it is my life and my body.