Anyone ever had glandular fever afte their APS diagnosis?

[Eliza_E]

Got some hideous virua which may be glandular fever..will know moer fter this Friday's blood test. ANyone any ideas how long it takes to shift?

[jessielou]

Hi Eliza

Not had glandular fever since teens, but lasted a few weeks and then was shattered for a month or so! I did find it set my tonsillitis off tho and had repeated episodes for a year or so, whilst at college!! Not had any problems in that area since I was 18.

I'm sorry cant be of more help hon, hope you feel better soon!!

Take care gentle hugs love Sheena xxxx

[GinaD]

Using an iPad in the dark, huddling under blankets and with pillows lined up so the light won't wake hubby makes correct spelling quite a challenge!

I am unfamiliar with " glandular fever.". Could this perhaps be the disease known as " mono" or " mononucleosis" in the States? Starting at age 12 I had 7 cases of mono within 14 years. Of course now I'm thinking it was more likely to have been lupus.

[jessielou]

Hi Gina

Yep mono and glandular fever the same thing!!

As you say does appear to be early evidence of autoimmune conditions, particularly SLE!!

Know about the iPad and hiding, do the same!!

Take care gentle hugs love Sheena xxxxxx

[Manofmendip]

Hi

I had Glandular Fever at age 26 and I wonder if this switched APS on in me. The doubt would be that I used to get bad abdominal pains in my teens and Prof Hughes said that these were probably Abdominal Migraine and all part of APS.

Best wishes.

Dave

[jean48]

What kind of symptoms do you have with Glandular? Right now I have a sharp pain on one side of my throast. Feels like someone poking my left side of my troat with a knife Do you have this symptom?

Jean

[GinaD]

"Mono" presents with extreme fatigue (even by APLS standards) bad appetite often due to liver and spleen involvement) abdominal pain ( swollen spleen,) a sore throat and H-U-G-E lymph nodes, particularly in the neck. Often low grade fever as well.

I did not have a sharp pain in the throat, but I did have a sore throat. The impacted lymph glands (my description of how big they felt) made my neck very, very sore on the outside as well as the inside, but I can not recall any sharp pains.

There is a blood test called the "mono spot." My first case presented with a good positive mono spot. All other cases the mono spot remained negative until I was as much as 3 months into the disease. With my last case, Vanderbilt University Med Center sent me home, basically, to die as they were pretty sure I had leukemia. "Go home. We don't want to treat you have." (I did not have health insurance -- my Mom didn't want to continue to pay the $20.00 a month to keep me on her policy. I would have paid it but I was a very, VERY poor student attending a rich school (as in all my fellow students were from very rich families.))

One is supposed to get mono only once -- and since I had 7 diagnosed cases (by 6 different doctors) I am guessing at least 6 of these were lupus flares. One funny -- though I was too sick to laugh at the time: on 5 different occasions I heard doctors say, "You can only get mono once. So I don't know what you REALLY had that other (or all those other) time(s,) but THIS time you have mono."

The last local doctor, who calmed me down after I got home from Vanderbilt all depressed from my leukemia diagnosis, said "You keep getting something. I've seen this in you before. It wasn't leukemia then, so I'm betting it isn't leukemia now. We're going to try some steroids and see what happens." I got better. Dramatically and quickly. I came home "to die" in November and by February I had a job in a local book store working on my feet 8 hours a day. I was back in school that summer.

What were all these cases? I swear, lupus seems the best explanation -- but the time or 2 when I have hesitantly advanced this theory to a GP I have been rewarded with this look and a dismissive response which I interpret as "another nut job." My current, new GP did not offer that look, so I am hopeful. (Should I get my hopes up that this one is going to listen to me?)

Hope this helps. Good luck. If appetite is an issue, try cracked ice with citrus juices squeezed on top. I was always able to keep that down.

[tassie]

I had (supposedly) glandular fever at around 12 and as far as I can remember went downhill from there so I suspect it may have triggered the autoimmune issues