Re: Aps strain: Hi All, Hope ye are... - Hughes Syndrome A...

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Re: Aps strain

tAigers profile image
2 Replies

Hi All,

Hope ye are all well...Just wondered can anyone explain to me what having the aps strain means for me...I am a bit confused...thanks a million...

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tAigers
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MaryF profile image
MaryFAdministrator

Hi there, do you have Lupus as well, as often people have Lupus and then get found to have APS Hughes as well! There is a wealth of information on the site attached to here the Hughes Syndrome Foundation website, it can do lots of things to different people. I am sure if you were to write a blog of your history to date, we could help you make sense of it all xxx MaryF

Hi there

probably thw wrong question to answer here but I saw your comment posted on the poll about kidney failure.

I am 31 and had my kidney transplant in 2004. I was diagnosed in 1999 with APS and Lupus. If you would like to talk then please message me I am happy to give you my phone number to chat. It is such a weird feeling having someone else's kidney in you (mentally I mean) but trust me, from the moment you wake up following the op you will start to feel better. I have so much to share with you but I cannot express how my kidney has changed my life for the better. Please read my life story - it is long so I promise not to test you on it!!

You will not be able to tell how much impact this is having on you at the moment but as soon as you have a properly functioning kidney you will know that it is all worth it.

Please try to keep your chin up - i know it is difficult, I had a serious wobble the other day!! and the other guys on here cheered me up!!

Take care

Tx xxx

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