unexplainable sholder pain

[Skyllark]

My wife who has APS is getting unexplained sholder pain - starts in the right and goes into the right eventualy... also will get a raspy voice... no signs of cardiac issues... any one had this, or heard of it?

[Skyllark]

the pain is also not muscular

[AlisonT2]

Hi

A few years back I had a frozen shoulder which was very painful a wise friend told me that it takes 1 year to develop, 1 year frozen and 1 year to recover and that turned out to be the case with me. However about a year ago I started developing shoulder pain in my left shoulder and thought here we go again but when I mentioned it to the haematologist (along with other new pains) she thought it was to do with the APS antibodies and I now take Plaquenil for it and whilst it hasnt taken it away completely it has helped. Hope this is of some use to you, Best wishes Alison x

[Skyllark]

docs want to do a MRI with die - but this will kill her Kidneys as for she is already in kidney failure - they are thinking PE - I really hope they can find a reason for this pain - Myofascial pain could be possible - she already has it in her pelvis!

[Skyllark]

thanks - will talk to her MFR about this - but she does not get muscular pain - pain starts there then moves over to her heart - doc's right now as I type are working on what is causing the pain. - will show them this and see what they say -