Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for October 2011

Experience of problems with hearing!!

Hi all Today i have been for a hearing test, my hearing ok. But symptoms i gave to audiologist were ringing in my ears, earache, sometimes very painful,...

Hi all Today i have been for a hearing test, my hearing ok. But symptoms i gave...

jessielou

•13 years ago

28 Replies

Lene and her sis need advice re renal issues in Aps!!!!

Hi all I have been chatting in another thread (in questions, in lisawa's question) with lene, her sis has end stage kidney failure and needs dialysis. I'm...

Hi all I have been chatting in another thread (in questions, in lisawa's que...

jessielou

•13 years ago

4 Replies

necrosis episode, prognosis, treatment , others' experience please

marycath

•13 years ago

9 Replies

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HIGH INR - nosebleeds, dizziness,

Hello, well my INRS are all over the place, when my INRS go down I have funny turns i.e. pins/needles, funny head - pressure, dizziness and numbness, and then...

Hello, well my INRS are all over the place, when my INRS go down I have funny tu...

daisy11

•13 years ago

8 Replies

DLA Renewal

My Dla renewal pack has finally arrived I will start filling it in soon. Although I get middle care rate I am really looking to get the mobility element as...

My Dla renewal pack has finally arrived I will start filling it in soon. Althoug...

TJSTICKYBLOOD

•13 years ago

7 Replies

What should INR be for a person with APS? And Lupus Anticoagulent and APS the same?

I have not had a thrombotic event yet in my life, but did have multiple miscarriages and a stillbirth. I also had suffered from severe left-sided migraines,...

I have not had a thrombotic event yet in my life, but did have multiple miscarri...

marse623

•13 years ago

7 Replies

Calling all lupus patients!

The United Kingdom's (UK) National Institute for Health and Clinical Excellence (NICE) recently released its preliminary recommendation to NOT cover the cost...

The United Kingdom's (UK) National Institute for Health and Clinical Excellence ...

Hidden

•13 years ago

3 Replies

I haven't neglected you

Hello again. I haven't neglected you. I have been with you all in spirit thinking of you all and sending you all positive thought. I went to hosptial to have a...

Hello again. I haven't neglected you. I have been with you all in spirit thinkin...

SharontheSheep

•13 years ago

4 Replies

Flu shot with APS?

I have found information showing that atibodies increase after a flu jab, and that in pts taking immune suppressants the body won't elicit a strong response to...

I have found information showing that atibodies increase after a flu jab, and th...

Hidden

•13 years ago

34 Replies

Take A Break Mag article

In the Autumn Special (2) of Take A Break Mag there is a double page story from a young woman who was diagnosed with Hughes - eventually! I was delighted to...

In the Autumn Special (2) of Take A Break Mag there is a double page story from ...

panda60

•13 years ago

4 Replies

How I know that my blood is thick!

Went & had my INR checked at my surgery 2 weeks ago & it has only been 2.3, the nurse said the comp' advised me to still take 7 & 6 warfarin even though my INR...

Went & had my INR checked at my surgery 2 weeks ago & it has only been 2.3, the ...

Suzypawz

•13 years ago

12 Replies

Does any one else with APS/Hughes have/get bone infections? Two times in facial bone and one time in tibia post-surgery! LisaWa

LisaWA

•13 years ago

11 Replies

Help for clotting on multiple anticoagulants...

My first dvt was due to a port - My jugular completed clotted off, as well as all veins in my left arm filled with clot. I was treated with warfarin for 3...

My first dvt was due to a port - My jugular completed clotted off, as well as al...

StarryUkulele

•13 years ago

2 Replies

Being treated for Splenic Lymphoma but positive for APS antibodies could it really be APS?

I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 17 years and many of the symptoms were treated as other diseases. I have been...

I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 1...

MerrittM

•13 years ago

3 Replies

Prof Hughes' blog - September 2011

- September 2011 Another record! – the first of October earlier this week was the hottest October day on record (as always, the record was recorded in...

- September 2011 Another record! – the first of October earlier this week was...

Hidden

•13 years ago

12 Replies

Still Waiting on Both Fronts!!!!

Hi all Gp now come up with the "shared care" as a reason for not prescribing the Plaquenil!! Ho hum, more phone calls tomorrow. Pub on hold for up to three...

Hi all Gp now come up with the "shared care" as a reason for not prescribing th...

jessielou

•13 years ago

4 Replies

Anyone experience left hand shakiness?

7 Years ago, I had a 7 month stillborn, and was told I had APS. Nothing was done about the APS. Then in 2009, I had an episode, what I now categorize as "Fog...

7 Years ago, I had a 7 month stillborn, and was told I had APS. Nothing was done...

marse623

•13 years ago

3 Replies

I live near Bristol and would like to know if there is a support group nearby

Pippa

•13 years ago

5 Replies

blind spots in your vision?

hi everyone, does anyone have gaps or blind spots in their vision? I had a tia a few years ago and every now and then I feel as though i have blind spots. Is...

hi everyone, does anyone have gaps or blind spots in their vision? I had a tia ...

9090heatherm

•13 years ago

9 Replies

LOW INR - ON WARFARIN AND CLOPIDIGREL - FUNNY TURNS, FACE FEELS WARM

Hello Well I have had LUpus and APS along with ITP since approx 27 years ago, and until March this year I have been on Aspirin, although I suffered from...

Hello Well I have had LUpus and APS along with ITP since approx 27 years ago,...

daisy11

•13 years ago

9 Replies

Suffering with pains in your joints.

Hi When I went to St Thomas’ back in may to the patient forum, the doctor said that those who suffer from Sticky Blood (Lupus Anticoagulant) and APS that...

Hi When I went to St Thomas’ back in may to the patient forum, the doctor sai...

Stannington-lad

•13 years ago

8 Replies

Wish me luck, Gp tomorrow!!!!Big move too!!!

Hi all Gp tomorrow am. Try again to get him prescribe Plaquenil. He had letter from Tommies last week and not bothered to contact me!! So the saga...

Hi all Gp tomorrow am. Try again to get him prescribe Plaquenil. He had letter ...

jessielou

•13 years ago

6 Replies

Is anyone else having problems with the sites e mail notifications ? Mine are coming through oddly formatted and very sporadically ?

suziech

•13 years ago

4 Replies

Alternative to aspirin?

Diagnosed as having APS after a major clot (and several smaller/query clots) 20 yrs ago - but now test negative and have done for 15 yrs... Have been on low...

Diagnosed as having APS after a major clot (and several smaller/query clots) 20 ...

Lucky67

•13 years ago

7 Replies

Can memory loss be caused by Hughes Syndrome, even when taking low-dose aspirin daily?

I've been taking low-dose aspirin daily for ten years to treat APS (I'm now 46). No symptoms since then but have had memory loss for several years as well as a...

I've been taking low-dose aspirin daily for ten years to treat APS (I'm now 46)....

PaquitaV

•13 years ago

8 Replies

Hughes syndrome

Does anyone on here have osteonecrosis, caused by lack of blood supply to the bones Karen

Does anyone on here have osteonecrosis, caused by lack of blood supply to the bo...

daisyd

•13 years ago

5 Replies

Back into St Thomas'.... after asking for a referral for 8 years!

Back into St Thomas'.... after asking for a referral for 8 years! A very useful appointment, but as one of those with seronegative, clinical diagnosis via...

Back into St Thomas'.... after asking for a referral for 8 years! A very us...

MaryF

Administrator•13 years ago

16 Replies

My blog

Hi everybody, my name is Stella. I have been following the community blog for some weeks now and feel it's about time I contributed. I am 57 years old and was...

Hi everybody, my name is Stella. I have been following the community blog for so...

Stella

•13 years ago

17 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2011

Experience of problems with hearing!!

Lene and her sis need advice re renal issues in Aps!!!!

necrosis episode, prognosis, treatment , others' experience please

HIGH INR - nosebleeds, dizziness,

DLA Renewal

What should INR be for a person with APS? And Lupus Anticoagulent and APS the same?

Calling all lupus patients!

I haven't neglected you

Flu shot with APS?

Take A Break Mag article

How I know that my blood is thick!

Does any one else with APS/Hughes have/get bone infections? Two times in facial bone and one time in tibia post-surgery! LisaWa

Help for clotting on multiple anticoagulants...

Being treated for Splenic Lymphoma but positive for APS antibodies could it really be APS?

Prof Hughes' blog - September 2011

Still Waiting on Both Fronts!!!!

Anyone experience left hand shakiness?

I live near Bristol and would like to know if there is a support group nearby

blind spots in your vision?

LOW INR - ON WARFARIN AND CLOPIDIGREL - FUNNY TURNS, FACE FEELS WARM

Suffering with pains in your joints.

Wish me luck, Gp tomorrow!!!!Big move too!!!

Is anyone else having problems with the sites e mail notifications ? Mine are coming through oddly formatted and very sporadically ?

Alternative to aspirin?

Can memory loss be caused by Hughes Syndrome, even when taking low-dose aspirin daily?

Hughes syndrome

Back into St Thomas'.... after asking for a referral for 8 years!

My blog

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