Well I have had LUpus and APS along with ITP since approx 27 years ago, and until March this year I have been on Aspirin, although I suffered from headaches, nothing major. However, unfortunately had to have spleen out due to Gastric Varices to off load portal vein pressure. I was on low heparin shots during the 3 week stay in hospital and for a further 3 months, and not on Aspirin as told not to take it until I saw Haematology, I was worried because my mum had a bad stroke due to APS and I kept relaying my thoughts but nothing getting through, and then in April I suffered from a TIA which effected my left eye it lasted half an hour and went to Eye Infirmary as had never experienced loss of sight. They contacted Haem Ward and the consultant said take Clopidgrel and they would then think about Warfarin, but it was quite awhile after that episode that I was put on Warfarin and the INR levels between 2-3 - I have noticed over the weeks that when it gets to a certain level i.e. 1.6 I start feeling strange, balance problems, pins and needles, burn sensation in face and head. which I have told the consultants about and they said to up warfarin. Also I am quite sensitive to Warfarin as get bad nose bleeds.Even on low INR I bleed.
I never experienced anything like this whilst just on Aspirin, so why when I am on Warfarin I get these funny turns.
I am now waiting for a appt to see a Thrombosis dr who has more experience than down here, but cannot wait. It is really effecting my life, and my daughter and husband get worried incase of get funny turn whilst out. I has made my confidence go down too!!
It would be interesting to hear if someone experiences this, as feel completely on my own here.