Lene and her sis need advice re renal issues in Aps!!!!

[jessielou]

Hi all

I have been chatting in another thread (in questions, in lisawa's question) with lene, her sis has end stage kidney failure and needs dialysis. I'm hoping somone out there can help with ideas on treatment regimes etc. Think her med team not know much about Aps related organ damage!! Help please!!

Lene support of her sis is amazing. Her sis Karen is a fighter!! Admire them both very much. Wish i could help but I have no experience of the kind of renal issues Karen has.

My Aps etc causes problems with my kidneys, but not to the extent Karen suffers.

Hope someone out there can help.

Hope this ok Lene.

Take care all gentle hugs love jessielou xxxxxxxxxxxxxxxxxxxxxxxx sheena xxxxxx

[MaryF Administrator]

I hope somebody on here can help, I am sure somebody will have some knowledge. Sorry that I do not have anything to offer on this one, but will have an internet search to see who has written papers etc etc. Mx

[jessielou]

Hi Mary

I hope you are well today.

Thanks for replying hon,

I do hope there are others who can share their knowledge.

I know its a rare complication of APS.

Take care hon, gentle hugs Sheena xxxxx

[paddyandlin]

Sheena try contacting kate at HSF she may be able to help hope you doing ok

[jessielou]

Hi paddy

will do thanks hon. I still here. Still causing docs to run to the hills! He he!

How you doin? Recovered from your hol i hope?

Take care gentle hugs sheena xxxxxx