Sticky Blood-Hughes Syndrome Support
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Anyone experience left hand shakiness?

7 Years ago, I had a 7 month stillborn, and was told I had APS. Nothing was done about the APS. Then in 2009, I had an episode, what I now categorize as "Fog Brain". 6 months later, while doctors were trying to figure out what was wrong, I had another episode. I have been on aspirin and nortriptyline for the last year, and it seems to be doing the trick. In the last 2 weeks, my left hand has been shaking. It isn't continuous, and happens about 1-2 times a day. I'm 37 years old, and although I have found doctors who are willing to listen and research, I still have one doctor who will only look at my blood test and although one test is positive, the others are negative, therefore indicating all is well.

I have read a lot online about APS, and have armed myself so that I can be proactive in my care. As of right now, I've only been diagnosed with APS, but now have this weird hand shake. I'm waiting for the other shoe to drop and be diagnosed with some other issue.

Any help you can provide, I'd appreciate. Thanks!

3 Replies

Ive fought for a long time to be diagnosed and have the label of aps on my records as it has such huge implications to health. My doctor is great but various symptoms ive had over the years have never been linked to aps as its not on my records and as there are so many side effects and not a lot of knowledge about it the symptoms are just dealt with singularly. I just wish there was a clinic in each area like there is for diabetes etc.. My blood tests in the past have come back as negative and a lot of other peoples too - have you been diagnosed on a clinical evidence basis then? Ive recently been to opthalmology again and he was so blase about the condition like it shouldnt even be something to worry about - without knowing the serious implications it has on your life. I hope you get somewhere soon, i worry so much every time a new thing happns. Ive heard st vitros dance mentioned within the aps set of symptoms - could it be this maybe? Only a thought ...


Hi marse

welcome, glad you found us, I 'm so sorry to hear about your loss and health issues.

I too struggle with shaky hands and drop things frequently, when it happens i look at my hand (usually my left) and wonder why it just did that. I think a lot of us have similar weird episodes, brain fog etc. I have fibromyalgia (i know there are others on here who do too) and lupus overlap symptoms,

Have you seen a rheumy, haematologist, if not st thomas's Londonis a long way to travel but worth it if they get things sorted!!

I hope you well today

Take care gentle hugs sheena xxxxx jessielou xxxxx jessielou :-) :-) :-)


Hi I have APs, Sjogrens, Mild Lupus, Fibromyalgia etc. I have shaky hands my left probably being the worse one. I have been told by a doctor this kind of thing runs in families and I'm sure it does but it is also something that can appear with an illness and needs to be lokked into. Good luck and hope you keep well



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