Lene and her sis need advice re renal... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,397 members10,601 posts

Lene and her sis need advice re renal issues in Aps!!!!

jessielou profile image
4 Replies

Hi all

I have been chatting in another thread (in questions, in lisawa's question) with lene, her sis has end stage kidney failure and needs dialysis. I'm hoping somone out there can help with ideas on treatment regimes etc. Think her med team not know much about Aps related organ damage!! Help please!!

Lene support of her sis is amazing. Her sis Karen is a fighter!! Admire them both very much. Wish i could help but I have no experience of the kind of renal issues Karen has.

My Aps etc causes problems with my kidneys, but not to the extent Karen suffers.

Hope someone out there can help.

Hope this ok Lene.

Take care all gentle hugs love jessielou xxxxxxxxxxxxxxxxxxxxxxxx sheena xxxxxx :-) :-) :-)

Written by
jessielou profile image
jessielou
To view profiles and participate in discussions please or .
Read more about...
4 Replies
MaryF profile image
MaryFAdministrator

I hope somebody on here can help, I am sure somebody will have some knowledge. Sorry that I do not have anything to offer on this one, but will have an internet search to see who has written papers etc etc. Mx

jessielou profile image
jessielou

Hi Mary

I hope you are well today.

Thanks for replying hon,

I do hope there are others who can share their knowledge.

I know its a rare complication of APS.

Take care hon, gentle hugs Sheena xxxxx :-) :-) :-)

paddyandlin profile image
paddyandlin

Sheena try contacting kate at HSF she may be able to help hope you doing ok

jessielou profile image
jessielou

Hi paddy

will do thanks hon. I still here. Still causing docs to run to the hills! He he!

How you doin? Recovered from your hol i hope?

Take care gentle hugs sheena xxxxxx :-) :-) :-)

Not what you're looking for?

You may also like...

VENTING....sorry

Hi Everyone : ) My Sis (Karen) is being batted around (since Spring) over here (U.S.) from...

Gynae issues and APS

Could APS cause gynae problems such as heavy bleeding, passing clots, pain in pelvis and rectum and...

Re: Strain of APS and kidney transplant

HI All, Just a quick update, I got my results there and I don't have APS but I do have the...

How many in your family have APS and/or other autoimmune issues?

You hear it all the time, is APS hereditary or not..... Then you hear from patients who have...

APS and White Matter in Brain & Dizzines

Have any of you had an MRI and been told you have a lot of WHITE MATTER in your brain, from the...