I have been chatting in another thread (in questions, in lisawa's question) with lene, her sis has end stage kidney failure and needs dialysis. I'm hoping somone out there can help with ideas on treatment regimes etc. Think her med team not know much about Aps related organ damage!! Help please!!
Lene support of her sis is amazing. Her sis Karen is a fighter!! Admire them both very much. Wish i could help but I have no experience of the kind of renal issues Karen has.
My Aps etc causes problems with my kidneys, but not to the extent Karen suffers.
Hope someone out there can help.
Hope this ok Lene.
Take care all gentle hugs love jessielou xxxxxxxxxxxxxxxxxxxxxxxx sheena xxxxxx