Went & had my INR checked at my surgery 2 weeks ago & it has only been 2.3, the nurse said the comp' advised me to still take 7 & 6 warfarin even though my INR should be 3 - 3.5!
I wasn't happy with being at this low level but I did as I was told.
She said if I started to feel unwell or any unusual symptoms to have it checked again.
For the past week I've been feeling quite ill, 'drunk' without the drink, dizzy clumsy pins & needles, shivering cold feeling in my face & head, ice cold right hand, migraine that wont go away you know the feeling!
Well....I went to the docs today & said most of this & he replied ' he couldn't understand how I would know that my INR would be low, as his 'training' as a doc' doesn't explain how I could possibly know the difference in the thickness of my blood!!' he is also worried that if I have ' an accident ' he would have to explain why my blood has been put at a level that could be dangerous!!
I do understand his worry but I told him I don't know why I get the symptoms I do that lets me know I have a low INR but I do!! it's just the Hughes with the symptoms it gives.
So he checked my INR & it now was only 2 !!
The comp' also agrees to up my warfarin dose but he is still worried of my blood being thinned to what I say I need it as! I even explained about Prof. Hughes' statement of he also likes his patients at 3 if possible,
He was the one who agreed with me a few mths back to put my INR up to 3 -3.5 because of the tia symptoms I was getting! it's as if someone has been talking with him & now hes worried ?
When I go to London on the 20th I shall ask if theres someone there that could confirm being on 3 - 3.5 so it takes the 'strain' off him, as I understand the worry if it didnt get the support he needs for that decision, but I'm there to see the neuroligist, so she may not be able to do it?
I can understand docs worry,plus he has been good to me in the past, its just that decisions like this affect my health so it's going to upset me, I dont want to feel like I'm going backwards again....10 years down the line & I'm beginning to feel like I did in the beginning