My Dla renewal pack has finally arrived I will start filling it in soon. Although I get middle care rate I am really looking to get the mobility element as well this time as my legs are deteriorating and I can't stand or walk for long too. I'm awaiting recent blood flow tests, my joins are so stiff and even when i move in my sleep I get severe cramp that makes me cry. I also get petechiae (bleeding into the skin) if my legs are overworked. Its a bit of catch 22 as I need to keep moving for circulation to be good but it hurts to move too much. Does anyone else have what I have described I wonder? Every day I have symptoms of some kind but my legs are consistent and hurt every day. People that know me ask why Im so positive about being ill but this is my life I know no difference I have been ill for at least 12 years that i know of (only diagnosed 3 years). The best thing that happened to me is being diagnosed because a) It put all my self doubt to rest b)knowledge is power. I try to educate almost everyone I meet about this awaful condition and hope one day people will recognise the disabling aspect to this health problem, as even people that know about Hughes seem to think now Im on warfarin I should be better. i accept that Im ill and I will manage it as well as I can with my Health Professionals I just want people to accept Im not going to be better and thats not me being negative (Im very much a half full cup) thats me understanding what is happening to my body.
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