I have been clinically diagnosed having 'probable' aps and anticardiolipin antibodies have shown up in pregnancy but dissapeared after pregnancy, which is delaying a label of aps for certain - my GP knows i have it and so do i. I had a stroke which has left me partially blind, at 30 years old, and only after contcting the RNIB have they agreed to help me fill out forms and find out what i may be entitled to - but i dont know where to go to find out what help im entitled to from the APS side of things. Ive lost my driving licence and bump around a lot and get confused and memory problems and extreme tiredness but does anyone know if your expected to work with all the symptoms or get any sort of allowances? Even a bus pass to help me get around would help - or taxis to my many hospital appointments! I know every situation is different and nothing is certain so i wont hold anyne to it!! I am new to this sight and finally there is a bit of support through it all - for such a long time your mde to feel like a hypochondriac because these auto immune things are little rips and just hide!Thankfully my dr is great and is on side - but ive been through the system so many times and got nowhere - even a stroke was missed three times,they even gave me iron tablts because my eyesight was bad while in hospital miscarrying with known anticardiolipin antibodies, thanks
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