Sticky Blood-Hughes Syndrome Support

Staffordshire/Derbyshire area group leader!

Whoop whoop!!! :)

Watch out...it looks like I'm a group leader!!

I've just recieved an email off Kate saying she's informing everyone in that area that I will be available to be a group leader for them !! :)

Whenever there will be a meeting I shall let you all know on here too so if anyone outside my area still wants / could come to it they are more than welcome :)

The more the merrier !! :) :)

I have a few ideas for fundraising, but please bring your ideas too! as you have probably guessed (if you have read my profile!) I try to raise funds with the use of my paintings & photography, also try to raise awareness with my website, blogs & facebook!

Oooooo....can't wait to hopefully bring some of us together to have a chin wag!! :) oh & of course it will have to have a costa!!!! it will probably be either the Stanhope or the Chesterfield Arms on the A 511. so if you want to look up directions in advance that would be great! hopefully see you there soon! :)

Sue xx

5 Replies
oldestnewest

well done sue good for you and i hope you and the people your support have a brilliant time. maybe this may be an option to get kate to get all the leaders on here just an idea.

WELL DONE

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Hello guys can't wait to meet up and start the fun xxxx

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I can't wait either !! it will be great for us Hughies to come & talk to others that will understand & not feel so alone! :)

xx

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This is all such good news Mx

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Hi Sue

Well done, be lovely to meet more hughies, looking forward to it.

Hope you feeling a bit better today,

Take care, gentle hugs Sheena Xxxxx :-) :-) :-)

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