Sticky Blood-Hughes Syndrome Support

Staffordshire/Derbyshire area group leader!

Whoop whoop!!! :)

Watch looks like I'm a group leader!!

I've just recieved an email off Kate saying she's informing everyone in that area that I will be available to be a group leader for them !! :)

Whenever there will be a meeting I shall let you all know on here too so if anyone outside my area still wants / could come to it they are more than welcome :)

The more the merrier !! :) :)

I have a few ideas for fundraising, but please bring your ideas too! as you have probably guessed (if you have read my profile!) I try to raise funds with the use of my paintings & photography, also try to raise awareness with my website, blogs & facebook!

Oooooo....can't wait to hopefully bring some of us together to have a chin wag!! :) oh & of course it will have to have a costa!!!! it will probably be either the Stanhope or the Chesterfield Arms on the A 511. so if you want to look up directions in advance that would be great! hopefully see you there soon! :)

Sue xx

5 Replies

well done sue good for you and i hope you and the people your support have a brilliant time. maybe this may be an option to get kate to get all the leaders on here just an idea.



Hello guys can't wait to meet up and start the fun xxxx


I can't wait either !! it will be great for us Hughies to come & talk to others that will understand & not feel so alone! :)



This is all such good news Mx


Hi Sue

Well done, be lovely to meet more hughies, looking forward to it.

Hope you feeling a bit better today,

Take care, gentle hugs Sheena Xxxxx :-) :-) :-)


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