It is my husband who is afflicted with Hughes/APS. He seems to be getting progressively weaker, and requiring more transfusions. Though I am an R.N - the information is still not out there. His hematologist lets his Hgb drop to 8.5 before they transfuse him, and it seems to help for a few days, then he gets weak again. The procrit injections - 60,000 units each time don't seem to be helping at all. Thanks in advance for your help.