Twice now have been to St Thomas`s and two different consultants recommended I be started on Plaquenil. One a lupus specialist and the other last Tuesdays Hughes specialist, On Tuesday was given a form by Hughes Specialist and her words were "you could take this to hospital pharmacy, but always really busy, or you can take it to your GP and he will prescribe it for you".
So on seeing how busy St Tomm/Guys pharmacy was and having our 11 year old autistic son with us (he doesn`t like to wait) we made the decision to bring the form home to GP.
Wrong!!!!!!!! Cos he still doesn`t want to prescribe it.
My haematologist at Derby should be able to prescribe but I`ve spent most of the week on the phone trying to speak to someone at St Thomas`s who could maybe fax something through to Derby Haemo!!!!
Just to add to the comedy/farce I can`t get hold of the lupus nurses, the consultants secretary is on annual leave, Oooh and they wonder why you get headaches!!!
Does anybody have a number at St Thomas`s that gets answered or isn`t engaged? Could message it to me please!!!
So frustrated, None of this is St Thoms fault, my Gp is usually fantastic but even with letter from lupus specialist and form from hughes specialist he will just not write a prescription.
I could just go sit in a corner,cry (but got no bl***y tears), suck my thumb and have a pity party!!! Probably get stuck in the corner too!!
Sorry this is long but had to let off steam.
Take care all gentle hugs Sheena (jessielou) xxxx