Different treatments (meds) for APS

[catlove123]

Not all doctors put patients on warfarin. There are newer, safer meds out now. THANK GOD!!! Is anyone on something more current?

[Star13]

The European Medicines Agency (EMA) (ema.europa.eu, 2019) and the Medicines and Healthcare Products Regulatory Agency (MHRA) (gov.uk/drug-safety-update, 2019) issued recommendations that DOACs should not be used for secondary prevention of thrombosis in patients with APS.

Source: Wiley Online Library

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[LindaMorrell in reply to Star13]

my doctors say one day after lots of research. APS patient might be able to take a version of the new alternative but definitely a big no no at the moment. I don’t like warfarin with all its tests but I know they all have my best interest at heart.

I would rather place safe and not take the risks of the new warfarin alternative until a type is produced and is proven to be safe

[Zombiegrl559]

There's been a start in countries like Italy and Spain where they are doing observational studies between patients on DOACs and those on Warfarin who have APS and reclotting emergence. The literature has seemed promising in a lot of ways. I'm on an Eliquis/Asprin regiment because I am severely allergic to Lovonox (facial numbness, almost necrotic looking mushroom hematomas at injection site, flu loke synptoms, low BP) and had continual severe bleeding through the nose and gums even with a good INR on Warfarin. My Hematologist has discussed other potential options we can add in the event I have a reclot including immunotherapy, another antiplatelet, or other options. I think it's important even on traditional textbook regiments to be looking at all the literature out there, even the obscure observational studies, and discussing any thoughts with your specialist or team of specialists. For a lot of APS patients, out of the box thinking is saving their lives and allowing them to lead productive ones. And for a lot, the textbook way is really good as well. A good doctor or team will listen to your needs and experiences and find a good mix.

[Pooky7]

I have been on warfarin since 2007. I also have a bleeding disorder. I have no problems being on warfarin. I have learned to balance diet— I eat keto. Lots of greens no gluten. And balance any meds or supplements I take. Life is good

[Thick_Blood]

I always ask my Hematologist, she says newer yes , safer absolutely not.. Not worth my life to TRY something that virtually all research says NOT to do.

[Tucson]

I haven't taken warfarin for years because for some reason I had 3 strokes while taking and refused to take it any more. I take Fondaparinux which involves lots more testing of my blood to check my kidneys etc. are functioning as they should be. I don't know why Warfarin caused me the problems it did. I self tested and was always in range and was on the same low dose 3mg throughout. Some drugs just suit some better than others I guess.