triple positive APS and Ozempic

[Thick_Blood]

I’m going to start Ozempic this week. Are there others on this form taking Ozempic and have you had any side effects that you think are related to and your blood thinners or hydrocloriquine?

[MaryF Administrator]

Hopefully somebody is in a similar situation, I am not, so can't assist with this. Best of luck for your new regime. MaryF

[kiminabmw]

My 49 year old nephew, triple positive for APS which went catastrophic (CAPS) in 2019. He was very ill, hospitalized for 2 weeks, 7 days in ICU on a ventilator and then 2 weeks in a rehab facility. Hospitalized again, 4 months later, in the same month, once for clots and the other for hemorrhage. He was on very high dose steroids for a bit over a year, which caused him to become diabetic and gain almost 60 pounds. He has been on Ozempic for 2 years, and is doing very well. He has lost 45 pounds, and is no longer taking insulin for diabetes. He is also on Warfarin and Plaquenil. He hasn't had any side effects from the Ozempic. He said the morning he takes his weekly injection, he really doesn't feel like eating, at all. He explained to me that he doesn't feel hungry most days, knows he needs to eat (which he does) but never has that uncomfortable feeling of normal hunger, like before Ozempic. It is very important with Ozempic to eat a healthy diet, and to exercise, so you can try to limit losing any muscle. I hope you do well, it is really an amazing medication for the people who really need it.

[Thick_Blood in reply to kiminabmw]

I am also a CAPS survivor. been on prednisone periodically and put on weight. I just can’t seem to get rid of it now and I have pain in my feet, knees and arms from inflammation. I’m hopeful that Ozempic will help me with this so I’m glad that your nephew is doing well and that this worked for him. Thank you for sharing.

[myarabella]

I have APS and I took Ozempic for several years, but it was for Type 2 diabetes. It didn't do much for me. I switched to Mounjaro 2 years ago and my blood sugar is perfect, I have also lost 35 pounds. Here is the problem: side effects include ovvasional nausea and throwing up, hair loss, some numbness at injection sites. Overall the benefits have outweighed the side effects, so it worth it to me, but I would never consider any of the current GLP 1 medications unless you are also Type 2 diabetic. These meds are not thoroughly vetted in my opinion. There are new ones to market. If you decide to take a GLP-1, be sure to consult an Endocrinologist.

[Thick_Blood in reply to myarabella]

Thanks, I am diabetic and have chronic kidney disease as well. I was put on Ozempic by my endocrinologist. now three weeks in with just the .25 dose with no side effects. My blood sugar seems to well managed but I have no change in weight.

I go to a the week after next, so we’ll see what happens

[myarabella in reply to Thick_Blood]

That,s good. I had no side effects on Ozempic either. If you want to lower blood sugar and lose weight I highly recommend Mounjaro for diabetics everything. Had Clear Cell Renal Cell Carcinoma about 2 years ago. After having a partial nephrectomy I went on Mounjaro and almost all is well today. Good luck with wverything.