Intermittent weakness in left leg & Arm

[SteveRN]

Hi I had a stroke 10 years ago and was diagnosed with APS 4 years later since then I have been on warfarin and aspirin. I have also suffered with migraines for many years and have been gettting 6 weekly occipital nerve block injections and 12 weekly Botox . Over the past few months i have been getting worsening of weakness in my lower left leg sometimes this involves the whole leg it’s like having a dead leg ( I had some weakness following the stroke but not this bad it often feels like my leg is going to give way) Also i get weakness in my left forearm with numbness in the arm, it seems to be associated with my migraines. So i went to see a doctor at my GP surgery who advised me to do a self referral for physio, as i have not seen my neuro headache consultant i asked her to contact him. She wrote to him saying I was getting numbness in both of my feet and my upper arm. Luckily i have spoken to my Haematologist twice in the past two months and i have got another appointment next month and he is organising a brain MRI. I am also overdue with migraine treatment as it is 13 weeks since my last nerve block. Try to get a GP appointment in the uk is bad enough but some of them do not seem to listen

Kind regards

Steve

[lupus-support1 Administrator]

I’m sorry reading your news.

I wish you a complete and speedy recovery ❤️‍🩹

With good wishes,

Ros

[SteveRN in reply to lupus-support1]

Hi Ros

Many thanks for your support it doesn’t help getting daily migraines especially with my INR’s fluctuating at the most but at least I have a handle over them because I take my own and decide on the dose of warfarin myself as well as my haematologist has ok’d me to take control.

Kind regards

Steve

[BeachHaven123]

I will echo the admins words and hope that this leaves u soon ! Since we seem to have varying approaches according to our specialists I would think further testing or an MRI would hopefully disclose the source. If it is not neuro maybe a reaction to something? My impression is that we are all so different and sensitive we are difficult to diagnose.

I am so sorry you had a stroke We have a doctor here in NJ who had a stroke in med school and was diagnosed When Covid came around he was the man. Why? Because he knew blood clots better than anyone else.

Please let us know how it goes.

Fingers crossed!

Susan

[SteveRN in reply to BeachHaven123]

Hi Susan

Thanks for your support. Yes it was unfortunate that I had my stroke but I was lucky in the fact that at the time i was a neurology nurse specialist and one of my colleagues ended up being my consultant neurologist who diagnosed me with antiphopholipid syndrome ( with perseverance). However he no longer works in the hospital that I attend but my haematologist is very good. I heard on Saturday that my request for a neurology consultation has been rejected, i am not surprised with the letter the GP wrote because all the symptoms she gave did not match mine. I shall await the MRI and also try to contact the Migraine specialist nurse and I have completed a self referall for physio as suggested by the GP.

I hope you are keeping well

Kind regards

Steve