Good evening - I was diagnosed with Hughes Disease after the birth of my daughter in 1995. It hasn’t, to my knowledge caused much of a problem over the years. However last June I was diagnosed with hypothyroidism. And I have just had a panic with suspected malignancy in my lung, that a CT scan has confirmed was not a tumour but two areas where my lung has collapsed.
Has anyone else with APS experienced this? Could it be as a result of clots? I only received this news on Christmas Eve and have an appointment to see my GP on 8 th Jan.
Any thoughts and advice would be so gratefully received’
Thank you and I hope the holiday period is going well!
Kate
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Wild-Bird
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Wow, I just came across your post. I also have Hughes and have had so many pulmonary embolisms the past four years. I have had hypothroidism since I was 13 (am 51 now) and it really doesn't bother me. That said, for the past 6-9 months, I have had a bad sharp pain in my upper right lung area (,in my back). I haven't gone to get it checked, and it seems to be getting worse (I have a hard time getting into my car without it taking my breath away). Lately my pulmonologist (who diagnosed asthma several years ago) was shocked that my recent pulmonary function dropped from 68% to 41%. I am wondering with all the chronic clots/asthma/infections, maybe my lung has collapsed? What does yours feel like? I hate to go get this checked as I feel lately I have been to the doctor so many times.
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