Azithromycin and APS?: I think I’ve... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Azithromycin and APS?

Wittycjt profile image
9 Replies

I think I’ve taken it before but I am not sure. Has anyone else been prescribed it when you’ve had diag of Hughes? I am taking it for a very bad case of the flu. Not looking for medical advice but want to know if anyone else has used it safely? Ty in advance

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Wittycjt
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9 Replies
henyrjonze profile image
henyrjonze

Why are you taking an antibiotic for a viral infection?

Wittycjt profile image
Wittycjt in reply tohenyrjonze

Because i have a history of it turning into pneumonia quickly and they want to be preventative. Do you have an answer to my question?

KellyInTexas profile image
KellyInTexasAdministrator

sorry Witty…. Awful flu surge this winter. Mean ole bully!

Other than keeping an eye on inr, ( if you are warfarin, I can’t remember what you are currently on) , the only antibiotics that need a watchful eye for if you have a connective tissue disease like Ehlers Danlos Syndrome/ Loeys Dietz syndrome, Marfans Syndrome are “levoquin” family antibiotics that have the risk of causing tendon injury/ damage/ rupture .

You might ask your doctor (s) if it would put you at any risk for that.

The issue I am speaking of specifically are genetic mutations like SMAD, TGFB3, etc.

( I have Loeys Diets Syndrome, TGFB3, the signaling doesn’t work to make to collagen effective. I’m starting to spontaneously tear tendons , etc…) So in can’t have this kind of antibiotic.

Wittycjt profile image
Wittycjt in reply toKellyInTexas

Thank you Kelly

myarabella profile image
myarabella

I have taken it several times without incidence.

Wittycjt profile image
Wittycjt in reply tomyarabella

Thank you myarabella

henyrjonze profile image
henyrjonze

Yes. I have used it for strep throat. Took it at the same time as warfarin, lamotrigine, and all my other meds.

Pooky7 profile image
Pooky7

All antibiotics mess with my INR. I just get tested more. Another thing is take probiotics and eat sauerkraut if you can. Get your gut biome working again. I have never had pneumonia, be well.

Wittycjt profile image
Wittycjt in reply toPooky7

Thank you

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