My daily dose: this is my every Sunday... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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My daily dose

Thick_Blood profile image
4 Replies

this is my every Sunday chore, probably like many of you to fill your pill sorter. I’m quite anxious about supply chain and pending tariff’s . They could impact all of our abilities to get the medication’s that we need at a reasonable cost. Do you have a 90 days supply of all your medication’s? In particular blood thinners?

Oh did not show Lovenox or my Teraperatide shots.

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HollyHeski profile image
HollyHeskiAdministrator

My issue could be USA supply of clexane - causes me anxiety in issue of cost and supply!

Thick_Blood profile image
Thick_Blood in reply toHollyHeski

Yes I agree with you although I don’t take clexane . My anxieties around Lovenox and availability and cost. Should there be supply chain or tariff issues?

Star13 profile image
Star13 in reply toThick_Blood

Mine is Dalteparin. There is a world wide shortage of heparin so anything that disrupts its supply will be life threatening. That along side the withdrawing of Heamatology services makes you wonder what value they put on people’s lives now.

Thick_Blood profile image
Thick_Blood in reply toStar13

That’s why I am anxious as well. I feel like people don’t think through the end impact on those of us dependent on these medications. Some of the medications I take are “ Nice to have”, vs. Heparin which I have to have to live. I will try to buy more than I need if they will let me.

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