Dans PSP seemed to be causing a rapid decline the past several weeks. He would stop mid way when eating, leaving food in his hand near his mouth, but not biting it. He is getting harder and harder to move, and rarely says a word.
Last week when we went to his nearologist, he slept in the wheel chair the entire visit. He did the same the next day and did not eat much. He has had a cough at night for a while,. The night time cough did get worse, but that too was attributed to PSP.
Friday morning he had a very slight fever, up one degree. I worried about aspiration pneumonia . Once we got to the ER he actually said about 3 words and smiled. He rarely smiles anymore . He was diagnosed with influenza A, which is an epidemic in the US. The gave him an intravenous bag of fluids, tamiflu and sent us home. He seemed to understand what was wrong, looked right at me and was bright eyes and aware. He answered a simple question with yes or no. He was aware that he was feeling miserable due to a bad flu and he would soon recover. His cognitive state was So much better.
Sunday the hospital called and prescribed antibiotics for a urinary tract infection. He is now back to total lack of communication. He usually can not even make a decision when I tell him to squeeze my hand for yes. I am almost wondering if some of this is due to depression. When he was at the hospital and he thought they could help him, he seemed happier. When we has home and realized he was ill and would get better, he smiled, looked at us when we spoke, and said a few words. He seemed like he was with us.
Or is there a clinical reason why a virus, or anti viral med would cause an immune response or lowering of inflammation in the brain. Believe me the change only lasted about 2-3 days, but it was obvious. He is back to a blank stare.
He has heard us talking about needing help and the disease progression. Perhaps thus has him in a state of depression and hopelessness. Has anyone had any luck with antidepressants.?
Thanks, any thoughts are appreciated.