My dad was diagnosed with PSP in October 2015. We were very lucky that his Neurologist diagnosed it straight away. He had several years of little falls, minor car accidents and slightly slurred speech. My Mum who is 83 has cared for him at home until last May, when it became too much for her. He was becoming demanding, incontinent at night and had to be watched 24/7 even though he had a walker. We placed him into a Nursing Home in May after several falls, where he ended up in hospital. Dad was not happy. He is now on pureed food and can't dress himself or feed himself. He was finally settling in until in December we were told that the Nursing Home was closing. We had to find another home, which we moved to on the 29th December. Dad is now back to where he was in May last year.
It is so sad to see him just sitting in his chair. He dribbles and coughs a lot. The nursing staff are really caring, but he is so angry about being there, I think he makes it difficult for them.
My Mum used to visit him every, but now has cut back to every second or third day. I visit him once a week. I always leave there in tears, because I feel the man I am visiting is not my Dad.
I can only hope that he will not suffer too much with this horrible disease. It is so cruel and unfair.