My husband T has been diagnosed with PSP in 2013.
Apart from his deteriorating speech attendant gagging on water, he seemed to be beating the odds, and we were both managing well on our own, until recently whilst we we were away on a much needed holiday.
T seemed to have just completely changed. He started not wanting (or able) to go to the loo and had to be put on diapers.
He also had complete apathy NOT wanting to do anything NOT even his usual routine of taking a shower and shaving by himself (with supervision) and the physical exercises or reading that he does at home, quite diligently. All he wanted to do was sit and watch the same news loop on TV the whole day, despite repeated encouragements to go out. He has also developed a very very slow shuffling walk.
I was hoping that it was just the unfamiliarity of his surroundings and I was hoping he will snap out of this stupor once we are back home in familiar turf.
We have been back home for a week now and barring jet lagged, he seemed to still be in the same limbo?
Anyone experience this kind of sudden behavioural change?
I’m stunned and scared to say the least, as it seems so sudden and I’m NOT prepared or ready for this drastic changes yet.