PSP Association

Advice needed on chewing himself and objects

My husband is chewing everything.

He is chewing his fingers until they bleed, he has a blood blister on his arm that he bites until it bleeds. He chews the wires on his cassette player (that he listens to his audio books on). I have given him soft balls to hold but he's chewed these. I have also got cube clickers for him. He will not listen to me when I ask him to stop. Anyone else experience this and do you have any tips.

It has been suggested I get him a dummy, but he's not daft, he still understands and also I cannot find anything suitable on line. I will also get angostura bitters for his fingers but am reluctant and would rather find an alternative. Help !!

17 Replies
oldestnewest

Hi DOttieLOttie;

I haven't had this experience, but I wonder if dog toy/chew/bones would work? Not the rawhide or animal products which are harsh on the stomach, but the new-style organic chewy rubber kind? There are all different types and shapes so you should be abe to find one he couldn't accidentally swallow. Also, I wonder if there are some orthodontic-grade materials available from a dentist? When I had invisalign braces they gave us these "chewies" that were just tubes of orthodontic foam stuff to bite on - although they were too small and maybe a choke hazard....

1 like
Reply

Another thing: Have his health professionals considered whether a calming medication would help? An SSRI or something? Just wondering....

1 like
Reply

Thank you. I will make a call on Monday to our Consultant.

Reply

I don't remember Bruce having this problem. But behavior such as with perseverating on specific things; tv shows; exactly where to park; etc. cab be treated with an anti anxiety med.

You might talk to his Dr. about using an anit anxiety and if it is the behavior that draws bad language and screaming out in some patients or OCD like behaviors in others, then this biting may sort of fade away. But again talk to his doc., and see what he has to say....Dottie, Do you think the Amatadine has anything to do with this (new?) behavior.....

((HUGS))

AVB

1 like
Reply

I had wondered about the Amantadine and so will contact the Consultant on Monday.

Thank you

Reply

There are lot of oral behaviors associated with frontotemporal dementia. I suggest you check out the AFTD website for some info. This is a topic widely discussed on the FTD Support Forum but, like HealthUnlocked, that's a membership-only group. If you find other FTD symptoms, it's definitely worth joining the FTD Support Forum.

As I recall, these oral behaviors are an OCD symptom. They are often treated with anti-depressants.

3 likes
Reply

That is interesting because his initial diagnosis was FTD but then changed to PSP of which there is no doubt, (according to Professor Rowe at Cambs university)

I will contact him and inform him of these behaviors.

Thank you

Reply

Symptoms can overlap. He has PSP with a FTD symptom.

2 likes
Reply

My husband was starting to feel like he had to bite down on something all of the time. His jaw was very tight, and rigid. At night he would bite down on a towel. I noticed that one of the side effects of his Flomax was “rigid jaw”. The urologist confirmed he was aware of several other cases of this side-effect, so we stopped the medicine. There was definitely improvement , but his jaw is still tight. Read recently this is a symptom of PSP. Botox injections are used for improvement, but I don’t know details. Good luck to you.

2 likes
Reply

I have no experience with this but some great suggestions on prev posts.

Just one other thought has he had a dental check recently just to make sure he doesn’t have tooth ache or damage from the biting causing him pain.

Take care do let us know how you get on and hope you find something to ease this soon, sounds very distressing for both of you

Love Tippy

1 like
Reply

Thank you Tippy

Yes he has 6 monthly dental checks, also he is able to tell me if he has any aches or pains.

Warmest regards

Pam

Reply

My hubby is doing this biting everything he can get hold of bad language screaming out our doctor just said it part of his lewybody psp cbd x

Reply

Yes, it is awful to see such damaging changes in behaviour.

Stick in there xx

Reply

Try looking for adult teethers. They do exist as they are used by stroke patients and those who have jaw surgery. Try stroke charity. My husband had this problem. He couldn help it he just had to chew.

3 likes
Reply

Thank you.

I've ordered him an adult bangle to chew on from chewigem.

In the meantime I am giving him straws to chew on !!

Reply

My husband doesn't bite, but recently has started to grind his teeth together, a sound that drives me crazy. I keep telling him to stop that he will wear his teeth down and then won't be able to chew his food but it doesn't make any difference.

Hope your GP/Neurologist can help. xx

Reply

I have ordered him a 'Bermuda Bangle' from Chewigem, on line.

This is an adult bangle that he can chew on and in the meantime I have replaced the wires with straws,( that he flattens in no time by chewing on them) !!

Will let you know how effective this is.

Regarding your husband grinding his teeth the dentist may be able to help. Geoff has a gum shield at not to stop this grinding.

Reply

You may also like...