Thinking about starting a support group

[BindiLeech]

Hi there my wonderful support group. I must admit, that although I do not always respond to things that are written on this site, I usually read everything, and I usually access this site every two or three days.

Now the reason for my post today................ I am wondering about how to create a Support Group for PSP 😉 " people" as opposed to the word " sufferers" and their significant other. I am also thinking about having this at our home ( in St James Park, Birkdale, Brisbane Queensland). So if there is anyone on this website who may be interested in attending, can you please let me know either via this website, or on messenger or Facebook . I will be more than happy to contact anyone directly with my direct contact details and address etc once we have established contact.

Thank you again my friends. Cheer, Bindi xxxxxxxxxxxxx

[easterncedar]

Good for you, Bindi! I hope you can manage it. One of our most well-loved members, peterjones, is from Queensland, but I don't know where. I would come if I could, but am about as far from you as is possible on the surface of this planet. Best of luck, Easterncedar

[abirke in reply to easterncedar]

And I would catch a ride with you ec!

[Hummingbird_]

Bindi, are you a member of any FB PSP Groups? I know of a few including one for Australia & NZ but can't recall seeing your name - it might be worth posting in them or tey Disease Maps x

[Kathleen52 in reply to Hummingbird_]

I would like to come if at all possible although would have to fly from Mackay. Let me know though as it would be good to have contact in same state

Hope you are doing well

[BindiLeech in reply to Kathleen52]

Hi there Kathleen.........depending upon how many responses I. Get, I will certainly keep you informed. I guess the other thing is when do you have to come down this way again (or do you)????? Thankk you for keeping in touch x x x x

[63Model]

Hi Bindi, I would be interested in a support group. I care for my Father who has PSP, in our home near Boonah in SEQ. not sure that I could travel to Virjdake though as I have to get someone to look after Dad. He hates going anywhere.

[BindiLeech]

Hi there 63Model!!!!!!!! I absolutely love your name - maybe I should change mine to 55Model!!!!!!!. Well, so you live in Boonah - that would be quite a trip for you from there to us here in Birkdale - we often travel around the place so maybe we could organise to come and visit you both one day soon. Please keep in touch

Cheers Bindi x x

[63Model in reply to BindiLeech]

Thanks for getting back to me Bindi, is it you with PSP or a family member? It is good to talk to someone relatively close by as this is such a rare condition. My Dad was diagnosed with Parkinson's in 2006, that diagnosis changed to PSP in 2010. Diagnosed by Dr John Cameron. Dad is just about to (in March) change to a new neurologist (Dr Kerryn Green) because she works out of Ipswich which is closer to us.

That's great that you get about a bit, Boonah is a lovely area and probably about an hour and a half from you. It would be lovely if you could come visit one day. By the way - my name is Kerryn and my Dad's name is John.